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Entries in diabetes (78)

Friday
Dec142012

Pathway to Stop Diabetes

 

Image courtesy of Pathways to Stop Diabetes

The American Diabetes Association has just announced an initiative called Pathways to Stop Diabetes. Here is a brief snippet from their website about the program's intentions.

 

We realize that it takes more than natural talent for young researchers to realize their full potential. It takes comprehensive support every step of the way. To make the career commitment to diabetes research attractive, fulfilling and rewarding, Pathway to Stop Diabetes will provide that support in every way.

 

I think that it's very exciting to see such a large organization thinking about research in a different way. It's also encouraging to see that program financially backed so significantly by pharma companies. I hope you can take a few minutes to learn more about Pathway.

If you are a brilliant young scientist, are raising one or know a young researcher that may be interested in being at the forefront of discovery. Please consider diabetes research as your field of focus. Pathway offers researchers mentoring, grants and much more. Who knows, maybe you're the next Frederick Banting, MD. 

 

More blurbs from the Pathway to Stop Diabetes website:

"Our vision is simple yet revolutionary: find a new generation of brilliant scientists at the peak of their creativity, then provide them with the freedom, autonomy, and financial and professional resources to set them on the road to breakthrough discoveries."

"Diabetes research is critically underfunded. Twice as many Americans have diabetes as have cancer. Diabetes is over 20 times more prevalent than HIV/AIDS. Yet National Institutes of Health (NIH) funding for diabetes is 1/5 that of cancer and 1/3 that of AIDS. On a per-person-affected basis, diabetes funding is a rounding error in comparison. This difference has persisted for decades." - more

Arden's Day wishes the Pathway program a very successful (but hopefully short) life!

Be well,

Scott

Wednesday
Dec122012

Readi Pak from Sanofi (GiveAway)

 



Did you know that Sanofi recently launched a multi-purpose bag venture? I didn't either. The entire thing seemed a bit odd to me at first, so I reached out to them with a few questions. 

 

Was Readi Pak a company that Sanofi took over/rebranded?

Sanofi US designed Readi Pak after recognizing a need for a convenient and discreet way for people living with diabetes to carry around their diabetes supplies.


What made Sanofi get into this business? What is the goal?

Sanofi strives to help people manage the complex challenges of diabetes by going beyond the molecule to develop and deliver best-in-class innovative, integrated and personalized solutions that address real needs people have in managing their diabetes every day. We designed the Readi Pak after recognizing a need for a convenient and discreet way for people living with diabetes to carry around diabetes supplies. To make this a relevant solution, we wanted input on the design and usability of the bags from those newly diagnosed with diabetes and shared our early prototypes with a small local student group (many of whom have type 1) for their feedback and opinions. We are pleased to offer new products such as the Readi Pak in order to help people manage their diabetes every day.

 

Are there plans to expand with other products?

At this time, this is a pilot program and we do not have any plans to expand or other products under development.  However, our vision is to serve as a valued partner to the diabetes community by listening and engaging in a dialogue directly with people living with diabetes, and these conversations help us identify new opportunities to provide diabetes solutions that are truly relevant.

 

Now it makes sense to me why the company that makes Arden's insulin got involved in the D-accessory business. I've seen and used a Readi Pak and it's a solid product, appears very well made and was designed with diabetes in mind. It comes with a removable kit for your more often touched supplies and has plenty of room for all of the rest. It even has a reusable ice pack. 

Enough of all that, let's get to the fun part.

I have three Readi Paks, one Camouflage, one Blue and one Pink Swirl (that I used to evaluate the bag (it's clean/new don't worry) to give away. I don't have many giveaways so please don't expect an elaborate system to be put in place to choose the winners. What you can expect is this... I'll be putting names in a hat and then asking Arden to draw them out. I assume no liability and offer no warrantee for the bags. If that sounds good to you... read on.

Anyone living in the U.S. (and that's only because I'm paying shipping) that is interested in winning a Readi Pak should comment below "Please Enter Me". Be sure to leave your email address in the provided place so I can contact you for a mailing address if you win. The drawing will be, let's say, Saturday, December, 22, 2012. Entries arriving before 9 AM on that day will be included in the drawing. Please include your color choice in the comment and I'll do my best to get it to you. There is only one rule, please just one entry per physical mailing address. 

To learn more about the Readi Pak and to see the other colors, go to https://www.readionthego.com

I was not compensated by Sanofi/Readi Pak for this post. I'm even giving away the bag that was offered to Arden.

Monday
Dec102012

Diabetes is Always with You

I'm always watching my life and looking for new ways to say important things. Some stuff defies description. Often these are the very things that are most important to convey. So when an example comes up that I believe can take a thought to a new level for those looking in from the outside, it's my inclination to share it with you.

I feel like I've struggled in the past to make the point that diabetes is a 24/7 responsibility. I've said, "Christmas morning, 2 AM, on your birthday... it's always there" but do those phrases really tell the story? I never thought that they did, at least not completely enough for my liking. The other day something happened to me that I think conveys just how omnipresent type I diabetes is in a life.

I should begin by saying that my mother is safe and healthy.

Kelly took the day off so that we could do some Christmas shopping, our time was limited and we had a number of stops to make. Cole developed a cold the evening before so he was home from school and in bed. Kelly and I made the thirty minute drive to the mall as soon as Arden's bus pulled away and had successfully completed a few purchases when Cole called me. When my phone rang I had an arm full of gifts and Kelly had just disappeared to the opposite side of the store. I could barely keep the phone at my ear while holding the items as Cole and I began to speak.

I could hear how tired Cole was, his voice was labored and he was unfocused. He began mumbling and lethargically managed to say that someone had left a message on our machine about my mother. He said that it sounded important so he got out of bed to listen to it. My mom is 70, active and gets around with the assistance of a transportation company. She commutes to the grocery store, shopping, to the gym and everywhere else that she needs to travel with their service.

"The lady said that they came to pick up Grandmom but she wasn't there", that's how Cole began his story. "She wasn't there?", I asked Cole. I went over the call a few more times with him, "The driver came to pick Grandmom up and she wasn't there, correct?". He responded, "yes.. that's definitely what she said".

We don't live in the same state as my mother, we aren't too far away but still not in the same state or terribly close. There I was too far away to help and becoming worried that my mom needed assistance.

So I called 911.

I explained the situation to the operator and then hung up the phone to call one of my lifelong friends who happens to be a police sergeant one town over from where my mom lives. He was working and was able to make sure that an ambulance and police officer were in route to my mother's home. Then I called my brother, he was out of town too. No one could get to my mother so I was left waiting and hoping that the police would be there quickly. The situation was rapidly becoming extremely tense, I could feel my pulse quicken and I began to imagine my mother alone and possibly in trouble.

I needed information. I called the transportation company, no answer. There was nothing I could do, I was now standing in the middle of the holiday infused mall, holding my phone and looking like a lost puppy. Then my brother called me, "the police are in mom's house... she isn't there. Her pocketbook is on the sofa and there is a half finished glass of juice on the kitchen table, but she's not there". A few minutes later, unable to wait any longer, I called the house and spoke with the police officer myself. By now he found my mother's neighbor and friend, she indicated that my mother went to the gym. So I called the gym...

The man at the gym said that my mom is in there everyday, he knows her and her routine, they speak constantly. He was sure that she never came in that morning. Everything was crazy and getting worse by the second. My mom was missing, she never arrived at her destination, I had by now spoken to the transportation company who assured me that my mom was dropped off at the gym. My head was spinning trying to imagine what could have become of my mother in the twenty steps it would take to carry her from the car to the gym. Did she get ill, was she injured, mugged - is she dead?

"We didn't have Thanksgiving together this year", I thought. "She sent me an email yesterday that I haven't answered yet", that notion made me forget that I was worried just long enough to be sad. Then I remembered that my mom hasn't read the acknowledgement I wrote to her in my book. Suddenly the worried thoughts were coming faster then I could process them. "My kids are going to miss her", "what am I going to say at her funeral?", I was slipping into a panic. A few moments later the police officer called me back to ask more questions. I was on the phone, standing in a crowded mall, imagining the worst while trying desperately to hold together and answer the officer's questions - questions that seemed more important then any other I had ever answered before.

I snuck a look at my call waiting when it sounded. It was Arden, it was lunch time. "Officer, I have to take this call... I, my daughter, type I, hold on please".

Arden said hello, told me her BG was 136 before lunch and asked if she should bolus for the entire 49 carbs. I centered myself, thought about her morning BG, breakfast, where her CGM was at the two hour mark. I remembered what we did with the basal prior to recess, thought about the food in her bag and said, "yes, 49 carbs... how much insulin is that?". I didn't think once about my mother or the officer as I waited for Arden to respond, there was nothing I cared about in that moment more then finding out how much insulin her PDM was recommending. Then I flipped back over and finished speaking with the officer.

When someone tells you that diabetes doesn't stop, that it is unrelenting, unyielding and unrepentant. Believe them with the full power and meaning of those words. I could have been hanging upside down in a burning car and I would have taken that phone call and calmly talked with Arden about her lunch bolus. Diabetes won't leave you alone because you are busy, no matter how busy you are. It didn't care that day if my mother was lost, in danger or worse and it won't care if it's 2 AM, Christmas Morning or your birthday. The people that live with type I know the weight of those words, and my reaction to this moment is the new best way that I can convey that feeling.

I hope this brings the idea of what diabetes requires from a person to a new level of understanding.

As for my mother, the entire situation was one confusion. You won't believe this. One driver picked her up in the morning at her house, the second (different) driver couldn't locate her when he arrived to pick her up at the gym (I thought Cole meant she was at home for the initial pick up). Turns out that the first (newly hired) driver took my mother to the wrong gym, same gym franchise, different location. My mother didn't notice (she was reading in the car) until the car had pulled away. She decided that since she was there, she'd workout and then wait for the driver to retrieve her as always... except the second driver went to the correct gym, where obviously, my mother never was. But that's not the story, it's just the vehicle that I brought it to you in.

Tuesday
Nov272012

HuffPost piece feat. DOC quotes

DOC member and Huffington Post contributer Riva GreenBerg recently asked two questions of some DOC members. The answers she received were featured in her latest piece.

 

"Tweets of Diabetes Experience"

Riva Greenberg

As Diabetes Month ends, here's the wisdom and insights from several of my fellow online diabetes bloggers and advocates.

While it's easy to see diabetes as a burden and at times feel angry, ashamed or frustrated, if we look at it through the spirit of thanks-giving, it's also possible to see something gained.

And, I find joy in sharing what I've learned with others.

So I asked the two questions below and these responses flew into my inbox. Also know, as diabetes moves out of the spotlight this month, we will all still be here alongside you on this journey -- and you can continue to ride along with anyone below by following their blog and/or Twitter account.

 

The rest of the piece, complete with all of those DOC quotes is on HuffPost at this link. You may recognize more then a few names. Great thanks to Riva for including me in the article!

Thursday
Nov012012

What is Awareness?

I'm as hooked into the health and wellness world as I can be, and I had no idea that November was not just Diabetes, but also Lung Cancer, Epilepsy, Hospice Palliative Care, COPD, and Pancreatic Cancer awareness month. This information really made me think. I imagine that the people in those other communities are putting a lot of effort into raising awareness... how did I not know? More importantly, is it possible to get these messages to a broader audience, and if we succeed, does the message become watered down? 

What does creating awareness mean?

A few weeks ago I saw athletes wearing a lot of pink, that made me think of cancer. Is that what the campaign is intended to do? I did think about people that are affected by cancer, I didn't make a donation, I didn't read about cancer... I just thought about it. 

Today President Obama proclaimed November Diabetes Awareness Month. His remarks end by saying,

I call upon all Americans, school systems, government agencies, nonprofit organizations, health care providers, research institutions, and other interested groups to join in activities that raise diabetes awareness and help prevent, treat, and manage the disease.

 

Now I think it's truly wonderful that the President did this, but what does the act accomplish? Who does it reach? When it does reach someone, do they have a similar reaction to when I see football players wearing pink? Will someone think about diabetes for a moment. How long does awareness take to grow, and what does it look like when it has matured? I'd hate to think that ten years from now all of our efforts culminate with a guy catching a ball while wearing blue gloves.

I'm not sure that hearing a sports commentator say, "Jones just made that catch with blue gloves Jimmy... did you know November is Diabetes Awareness month...". I mean that'd be really cool, and would indicate progress, but what is the tangible outcome? Perhaps this is the best anyone could hope for, and the end of what is reasonable?

What do I mean?

There is so much valuable information in the world that I wish I had time to devour. So many people touched by so many challenges. I don't have the luxury of time that would allow me to be aware of them all. Even if I magically found extra time, I can't in all honesty say that I'd use it to read up on COPD for example. It's with that said that I'll admit to not knowing what 'creating awarness' means, even though I spend a good part of my life trying to do it. 

I want everyone to understand, but I don't think it is reasonable for them to. I want every teacher to know, every bus driver to be ready, every person I meet not to say something ridiculous about diabetes. I just don't know if it's possible, or legitimate, to expect. 

Diabetes Awareness Month always makes me wonder if my efforts are focused in the right direction. I'll be spending some time this month thinking about my advocacy and awareness building efforts. I hope to come up with answers to the questions I raised here. Please add your thoughts if you feel so moved. 

There are so many wonderful and loving people in our community, and they are each motivated by the purest of intentions. I wish that all of our efforts and energy could create progress that we could hold. I won't be satisfied until I hear the sentiments and understanding that emanate from within our circle, understood and reflected from outside of it.