What is StripSafely?

StripSafely is the initiative to bring awareness to the issue of test strip accuracy. I'm hoping to help bring attention to the StripSafely efforts by helping to make you an advocate for the cause. You are not being asked to make a donation.

If you could just take a moment to read more about the efforts and then follow StripSafely on FaceBook, Twitter and on their website, you'll be supporting people who I completely trust to help the diabetes community have a voice in the fight to change the current levels of accuracy acceptability. I am not affiliated with StripSafely.

Issue - From the StripSafely website:

At a recent public meeting the FDA acknowledged1 that there are some 510(k) cleared blood glucose (BG) meters and strips that do not meet the accuracy standards for which they were approved. There is currently no clear course of action to insure people with diabetes are using blood glucose strips that meet regulatory requirements.

The rest of this statement can be found at this link. 

Who, What, How?

StripSafely is an ad hoc Diabetes Online Community (DOC) collaboration to help the general public understand that there are inaccurate blood glucose test strips. We hope to get folks involved to do something about that. By something, we mean write the FDA, elected officials, and the news media.

The StripSafely campaign was created by Bennet Dunlap who is the site admin. Scott Johnson, Christel Marchand Aprigliano, Kerri Sparling, Cherise Shockley and Kelly Close joined early on and contributed their skills. The campaign is not affiliated with strip manufacturers, the FDA, or any other remotely organized group.

The real work of this project is being done by community members who write letters and blog posts as part of this campaign. See the social media section for these efforts. We would love to feature your letters and blog posts. That’s why there is a form on every page’s sidebars to help you share what you have written.

Thank you for taking the time to find out about StripSafely!

Hey FDA, what about diabetes!?

Please take a moment to read diaTribe's message (below) to the FDA and then click on the link to their petition that asks the FDA to include diabetes in their upcoming 'patient meetings'.

Lend your voice and help to push this petition to 5,000 signatures so that our children's needs can be considered at the highest levels of decision making.

I hope you have a fantastic holiday weekend, thank you for your support!

Best,

Scott

From diaTribe:

"The Food and Drug Administration has begun to hold a series of patient meetings to gain a better understanding of specific diseases. Over the next five years, the agency plans to conduct at least 20 such meetings on conditions ranging from Chronic Fatigue Syndrome to Narcolepsy to Irritable Bowel Syndrome.

But not diabetes. That is unacceptable.

Four “slots” remain open (view the current list), and we want the FDA to add diabetes to its meeting docket for 2013.

According to the American Diabetes Association, nearly 26 million Americans have either type 1 or type 2 diabetes, and an additional 79 million have prediabetes. Those numbers are also increasing each year – the CDC estimates that if current trends continue, one in three US adults will have diabetes by 2050.

No one disputes that diabetes is one of America’s – and the world’s – most serious health epidemics. In 2012, more than one in five total US healthcare dollars was spent on diabetes, totaling $245 billion, and the government covered 62% of those costs, meaning everyone is paying for this epidemic. Despite growing needs, research dollars have also leveled off.

New therapies need to be investigated, tested, and brought to market, and as part of that process, the FDA must understand the daily challenges that patients face.

We need to tell our story to the FDA: about the need for accurate strips, more physiologic insulin, a broader range of drugs, and the Artificial Pancreas.

Our voices need to be heard.

Please sign this petition to urge the FDA to sponsor a patient meeting focused on diabetes – and the sooner, the better.

Thank you very much."

GiveAway: Lauren's Hope

It's time for the last giveaway of anniversary week, but first...

I wish that I could find enough meaningful words to express what the last six years of writing Arden's Day has meant to me. The truth is, so many of the tough times are made easier because I know that you are out there. I'm grateful that you find my blog useful and I want you to know how much I appreciate it when you visit. Thank you!

Now go get some free stuff!

Lauren's Hope is giving two winners their choice of either the bracelet that Arden wears or the caregiver necklace that I wear. Each winner will also receive a signed copy of my book, 'Life Is Short, Laundry Is Eternal'.

The ability to comment in this post has been disabled because entries must be left here on the Lauren's Hope blog. Good luck, I hope that you win!

Don't forget to enter the other giveaways currently running on Arden's Day:

Win $50 for your JDRF Walk

Signed Copies of my book

10 copies of the Disney/Lilly book, Coco's First Sleepover (giveaway closed)

Tell Me About Your JDRF Walk

I'd like to begin the Arden's Day Anniversary Week celebration on a charitable note. I thought it would be nice if we shared what we love most about our JDRF walk experiences. Everyone who shares their thoughts in the comment section (under this post) will be entered into a drawing. Later, at the end of the week, Arden will pick one winner and my family will make a $50 donation to your walk effort! You can enter up until August 10, 2013 at 11:59PM est. Due to a typo in the entry date (Was originally listed as 8/10/13) the giveaway has been extended. Entries now excepted until August 18, 2013 at 11:59PM EST

I'll get us started...

There are a number of great reasons to walk with your local JDRF chapter and while I'm certain that each of you will have a different 'favorite' part to share, mine is without a doubt the sense of community that I instantly felt when I realized that everyone that was walking either had type I diabetes or loved someone who did.

That feeling helped to buoy me for a number of years after Arden's diagnosis and while I still enjoy that feeling, my reason for returning each year is no longer the same. Today, I walk so that there will be a community for others to draw support from because I know how much seeing that crowd of people meant to me. It's was the first time after Arden was diagnosed that I felt less alone. That's why I walk!

What's you favorite part of walking for the JDRF?

Arden (age 2) and Kelly at our first walk - 2006

other anniversary posts and giveaways

  'Anniversary Week Continues: Books and Video' - A video we made in 2008 to support type I advocacy and a book giveaway.

'Who wants a copy of Coco's First Sleepover?' - I have ten copies of the new Coco book to giveaway

Update on Thursday, August 15, 2013 at 12:53AM by Scott Benner

Due to a typo in the entry date (Was originally listed as 8/10/13) the giveaway has been extended. Entries now excepted until August 18, 2013 at 11:59PM EST

Arden's Day is Six Years Old

Let's celebrate... It's the sixth anniversary of Arden's Day!

At exactly 3 AM on August 16, 2007, I posted my first blog entry on the Internet and "Decided to Share" began my online life as a type I diabetes advocate. I had no idea if anyone would ever read my little blog and there were times that I seriously considered closing Arden's Day because I doubted that I was adding a needed voice to the community. Well, it's six years later and I couldn't be happier that I made the decision to keep blogging, because so much has happened since that overwhelmed and exhausted guy first said these words...

I can’t sleep... Haven’t really been able to for about a year now.  On August 22nd Arden will be a Type I diabetic for one year.  I’m going to try and relay to all of you what Arden’s disease is, how it effects her and how it effects our family.  My goal is to give you a glimpse into our life so that you can better understand Type I diabetes... My hope is that the understanding will result in your advocacy.

Starting now I’ll be updating this site as much as is needed to bring you into all of this as completely as possible.  I’ll be taking pictures and video as much as possible.  I think diabetes is one of those things you need to feel to understand, an explanation just doesn’t do it justice.  It’s a much more visceral experience then you may think. That picture (above) is from just now (3:00 am), Arden just called me from her bed.  She wanted to lay down with us.  I checked her Blood Glucose (from here on out known as BG) and it was good.  Well not really good, high actually about 120 - 150 points higher then a non-diabetics would be at 3 AM but good for our purposes. Don’t worry it’ll all start making sense to you soon...  Please use the “Subscribe” button on the ‘Daddy’s Blog’ page to stay up-to-the-minute.  I really think that being updated every-time something happens will help bring you into the process. Please share this link with any and everyone you know.  Off to get some sleep...

Since that day, I've spoken to Congressmen and Senators, raised funds for the JDRF, written a book and met the most wonderful people. I could probably make a list as long as my arm of amazing things that have happened since I began to blog, but if I had to pick a favorite... it would be easy to choose. I am still, to this day, amazed at how much sharing our story helps others. Honestly, when I began six years ago, I never expected that. Moreover, I'm simply stunned by how powerfully you all return the love. That dynamic is, without a doubt, the most rewarding part of all of this. The relationship that we all have is one of the most uniquely human experiences that I've ever been a part of. Starting Arden's Day in 2007 was, without exaggeration, a life changing moment for me and that feels celebration worthy. Plus, six years is quite an accomplishment for a blog and I'm genuinely very proud to be able to lay claim to six years of diabetes blogging.

You are reading the 568th post that I've written for Arden's Day and the wonderful feeling that comes from sharing with you has not diminished one bit since 2007. It's my pleasure to be able to say that I am, in some small way, a part of something as wonderful as the diabetes online community.

You must be wondering why I am posting about an anniversary eight days before it happens. Easy answer... So you can be ready for what's happening next week. Stuff like...

Lauren's Hope is generously giving away some medical ID swagerrificness in celebration of Arden's Day's sixth anniversary!

Spry Publishing has donated a few copies of my book, Life Is Short, Laundry Is Eternal that I'll be signing and giving away. 

I'll be asking for your thoughts on what your JDRF Walk means to you and your family. A few days later, Arden will randomly select one of your comments and my family will make a $50 donation to your walk efforts.

I'll highlight one of my favorite posts from the past every day next week and reflect on them from today's perspective.

...and an announcement that includes giving away multiple copies of the newest Coco book from the Lilly/Disney collaboration, 'Coco's First Sleepover'.

I'm excited for Monday to arrive and hope that you are too! In the meantime, enjoy your weekend and good luck getting that Flintstones song out of your head!