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Entries in diabetes (78)

Monday
Dec122011

Stress, back pain, Howard Stern and my friend Mike

Stress thrives on two truths:

1. We all have stuff. 

2. We all think we handle our stuff, most of us don't.

Almost twenty years ago I heard a noise emanate from my lower back that I will never forget. It sounded like an explosion and tearing flesh combined. It was so loud that the people around me heard it. I heard it with my ears but also from within my body. It was terrifying and it hurt like hell. The next 12 months were doctor appointments, days spent incapacitated, lost work time, I was a slave to the pain in my back.

One day a close friend brought me a book. I'll never forget what he said, "I heard about this on the Howard Stern Show, Howard says it made his back pain disappear in a week". I remember joking that I'd probably be better off hitting myself in the head with the book. Right before my friend left, he wished me well and commented that, "it couldn't hurt anything - you're just laying here anyway, read it".

I was a man in my early twenties and I sincerely believed that my life was over. I could barely move most days and when I was able to eliminate the pain, it would only come back twice as bad the next day.

So I read the book...

I want to be clear when I say that my back "hurt" I mean it was as if twenty men had their hands wrapped around my spine and they were trying to squeeze the life from me. I mean that if I moved too fast or the "wrong way" that it would have been less painful to stab myself in the eye with an ice pick. I mean my back hurt like I had been struck by a thousand trucks and somehow didn't die - it hurt in a way that I hope none of you ever experience.

I read the book, it was a short book. I read it and I did as the author asked - I thought about my stress and where it came from, I took a leap of faith and threw myself into something that a year earlier, I would have mocked openly. I read the book and one week later my back didn't hurt anymore. 

After over a year of incapacitating pain, I read a book and stood up like nothing had every happened. Three months after I was told I needed spinal surgery, I just stood up and it didn't hurt anymore. I cried when I realized that the pain was gone - like a baby.

Some will say I was never really injured. I was there when it happened, everyone heard my back exploded. I can tell you that I did injure myself that day. That the pain worsened as you would expect, the injury progressed as the doctor told me it would. I had a text book back injury - I promise you.

Yesterday marked six weeks of my back "hurting" again, I wasn't laid up but I was in a great deal of pain and not moving well at all. Stiff, partially incapacitating back pain. I had been carrying it for weeks. I knew from reading the book that I wasn't injured but I was in pain. Perhaps it's time I tell you more about the book.

I'll keep it simple. Stress is bad for you and your mind doesn't want you to experience long bouts of it. When you deal with your stress by not dealing with it, your subconscious mind is still processing the turmoil that you refuse to outwardly feel. Your brain, for the lack of a technical explanation, gives you something else to worry about, to pay attention to - it distracts you in the only way that it can.

I wonder why it doesn't make you feel like you just ate chocolate while having an orgasm on a warm breezy day?

Some get headaches, some back pain, we all experience the distraction differently. Here is why I believe mine is back pain. I was a bright twenty year old guy in a terrible job that I could not figure out how to get out of. One day I lifted something and legitimately injured myself... that was all my mind needed, it now knew how to get me out of that crappy job even if I didn't. My brain did something to me that forced me to not go to that job ever again, it forced me to find a different path. It made me sit down and think about my stuff.

Back to yesterday. I was in bad shape and getting worse but instead of calling a doctor I forced myself to reflect on the last two months and figure out what was bothering me. Not the stuff I know about. The things that concern you but you are dealing with, those don't effect your stress level in the same way as an unexamined issue. 

Now just in case this all doesn't sound mystical enough, here's what happened to me yesterday morning. I figured out that I had been worried about a loved one. I don't want to give details but this person means the world to me and I am concerned about an aspect of their life. I know that I can't solve this issue and since I can have no real effect on it, I tried to ignore how worried I was. I guess that was eating me up inside because my back tightened up and when I tried to ignore the pain without finding it's source, it worsened and persisted for weeks. I tried telling myself that I wasn't injured (a trick that often makes the pain dissipate if the underlying cause isn't too serious) to no avail. I decided that I couldn't carry the burden of this concern without pain so I told the person that I was worried for them, that I knew it wasn't my place to worry and that I loved them and would do anything to help. My back stopped hurting by the time I got the words out and it has not hurt since. Six weeks of pain and tightness disappeared in moments.

I know that sounds a bit crazy but it's the absolute truth. I wouldn't have believed it either if I wasn't forced to all those years ago. Twenty years later I owe my life to that little book and to the man that wrote it, Dr. John Sarno. Dr. Sarno has written a few books on the power of the mind since then and I've read them all. They have relieved me of pain, hay fever and other stress related ailments. I'm sharing this with all of you not because I want to sell a book for the man, he's doing pretty well but because the world of diabetes is a rather stressful one. The next time you get a phantom pain, start feeling sick or begin to get overwhelmed, I suggest that you find a quiet place, come to terms with what it is that you are worried about and voice that concern.

Most people think that they handle stress well - those are generally the ones that don't. It's the screamers and the criers, the complainers and the talkers that handle stress the way it was meant to be. Those of us who put on a strong face and press on - we are the walking heart attacks, the back pain and headache people. Turns out that just like most things in life... the simple answer is usually the correct one. Let your stress go! If you don't have a person, get one, get a Twitter handle or a diary, pay a therapist or talk to a wall - just don't keep it inside. Sharing helps, it's why blogging is such a wonderful release for patients and caregivers, it's why your mother told you to not keep things bottled up inside.

I'd like to thank, in no particular order: Dr. John Sarno for writing such amazing books, Howard Stern for reading them and telling the world and my friend Mike for working in a book store when we were youger. The three of you saved me from a miserable existence. 

The paperback that saved me!

Friday
Dec092011

Your opinion is needed: Insulin Pumps and Glucose Monitors

I am in the throws of launching a charitable foundation whose focus will be assisting diabetic children that want but can't afford insulin pumps and continuous glucose monitors.

The necessary paperwork to form the charitable entity is getting very close to being submitted. In the meantime, I am diligently working on ways to make the charity as successful and far reaching as it possibly can be. I will be involved in a number of meetings and presentations over the coming weeks and months and I was hoping that you could help me to better understand how the costs associated with managing diabetes effects your financial life. I am very interested in hearing from the parents of children with type I but if you are an adult with diabetes I am still very interested in your answers - you never what the future will bring.

If you would be kind enough to anonymously answer a few questions, I will be able to use the data you submit as I search for the funding necessary to make this fledgling dream a robust reality. You won't be asked anything that would identify you and none of your personal information is collected by this site.

The answers that you provide will help me to make a better presentation when speaking with potential donors, supporters and sponsors. None of the answers are 'required' by the form and you can skip any you like by choosing "left blank".

Your support is greatly appreciated!

The data collection form is located here. http://www.ardensday.com/anonymous

Sunday
Dec042011

Why can't I count carbs?

Some days I can't count carbs, not the easy ones, not the ones that are printed neatly on the wrapper - the other ones. The ones that you measure, weigh and eye up in a restaurant. There are days when I feel like they're may be no one on this planet worse at it then I am. 

The other times, I am the man! Last night for example, Arden had a girlfriend spend the night, great girl, very polite, even brought a gift with her. She arrived during dinner because of poor planning on our part... Chinese take-out. I of course had recently given Arden a monster bolus and we had only just begun to eat when she arrived. Maybe two minutes after Arden's friend sat down, Arden decided that she was finished eating. She was excited to run and play but there were carbs that weren't accounted for. I told her that she needed to eat a little more rice to cover the insulin - Arden declined, politely and then her friends says, "I brought cookies, she could have a cookie!".

Kelly looks in her bag and pulls out the cakiest, sweetest looking cookies that I had ever seen. Without missing a beat and it should be noted that these cookies are not a mainstay in our house, I said, "26 carbs, I bet they are 26 carbs". As you can see they were...

My question is this. How can I, at times, be so spot on and at other times miss so badly? It's frustrating to say the least. I measure and count and get all of the math right and still bad results. When I finally come to the conclusion that perhaps basal rates or insulin to carb ratios need to be adjusted - we experience three perfect days in a row. 

School day breakfast

Arden has the same breakfast everyday, she is not a huge breakfast food lover and often defaults to cereal which drives her blood glucose sky high. It took me weeks to figure out the proper prebolus/extended bolus mixture but now I can keep the spike to a minimum. Except on the days when my it inexplicably doesn't work.

Last week she ate the same thing everyday. Four of the five days her BG was 170 before recess, 135 after recess and before lunch (lunch is after recess so it's perfect). Good pre lunch number, safe range for recess and the insulin was finished before the next bolus. Except on the fifth day, on that day with all the circumstances the same, Arden was 65 before recess.

I know that there are many constants with type I diabetes. I'm not looking for answers, more just sharing about it to let you know that this is normal. If you are new to all of this, you will definitly experiance moments when you feel as if you are doing everything completly wrong - you are not. Even those of you who have been managing type I for years will have days when everything feels out of control and that's normal as well.

Step back, take a deep breath and start again. Most of all, please know that all of this is normal, diabetes normal.

Thursday
Nov172011

Guest Post: Mila Ferrer of Jaime-dulceguerrero.com

I first met Mila Ferrer early last summer while she was investigating different platform options to launch her type I diabetes blog. In only a few months she has proven to be a strong voice in the diabetes blogging community and I am proud to feature her today as my first guest writer. Take it away Mila...

***

Hi, I'm Mila Ferrer, I write a blog in spanish about Type 1 diabetes. Why? My younger son Jaime was diagnosed at the age of three. Since then, our family has been learning and educating ourselves about this condition, to be able to provide Jaime the best care. My blog Jaime-dulceguerrero.com is filled with experiences, education and mostly support to other families. During this learning process we've met the most amazing group of parents and patients, people that are as committed to educate and support as we are. This wonderful community or DOC (Diabetes Online Community) is eager to help, promote education and inform about anything that might be useful to us parents and patients. 

As a parent my first search was to meet other families, having a young kid diagnosed with T1 Diabetes can sometimes be overwhelming, and it's nice to know that we are not alone. Thats how I met Scott and Arden, I started reading his blogs and really connecting with his feelings. My family wasn't alone. Scott and I have decided to share some of our posts, that way we'll keep sharing our thoughts and experiences through this journey.
I want to share with you my thoughts and feelings about the DOC. That group of people who are always there to answer questions and lift your spirit when your feeling blue. This link will take you to the spanish version. I also created a tab on the page that is named Mila's Blog, there you'll find some of my posts translated. Hopefully you'll enjoy my posts and find them helpful to you and your family, feel free to ask me anything in english, I'm fully bilingual (sometimes I like writing better in english than spanish). 
You can find me on Twitter @dulce_guerrero (english and spanish information)
***
Please take a moment to check out Jaime-dulceguerrero.com but before you do... dust off your high school spanish and give Mila's DOC post a read... It is linked above but I'm including it in it's entirty right here.

***

¿Qué es una comunidad? Para mí, una comunidad es un grupo de personas que trabajan o buscan un fin común. Ese grupo de personas que hablan el mismo idioma, viven experiencias similares y se ven reflejados en otras historias. La comunidad se apoya, busca el bienestar de todos y comparte ideas e inquietudes.
Algunos de mis compañeros de viaje en esta travesía llamada Diabetes.

Afortunadamente cuento con una gran comunidad que apoya a mi familia y me ha servido de ejemplo en este gran proyecto de educación.  Me refiero a el DOC (Diabetes Online Community) o la Comunidad de Diabetes en Línea. Esta comunidad cuenta con tanta gente maravillosa, talentosa, inteligente, pero sobretodo comprometidos con la diabetes. Lo más curioso es que no he conocido personalmente a ninguno de ellos, sin embargo en nuestras conversaciones en Twitter o Facebook es como si nos conociéramos de toda la vida. Siempre dispuestos a ayudar, a contestar preguntas y apoyarte cuando te sientes frustrado.

En muchas ocasiones cuando tengo alguna duda o me ha pasado algo fuera de lo común relacionado a la condición de Jaime, recurro a mis colegas blogueros de diabetes. Através del DOC he conocido padres y madres de otros niños igual que Jaime y pacientes adultos que llevan años manejando la condición. Quién mejor que ellos para contestar preguntas, aconsejar y dejarnos saber que no estamos solos. Ellos viven lo que yo vivo, tenemos las mismas preocupaciones y queremos lo mismo; el bienestar de los pacientes de diabetes.

Durante este mes de noviembre el DOC ha trabajado mano a mano creando conciencia y apoyando las actividades benéficas que provean un mejor tratamiento a los menos afortunados, la Gran Prueba Azul fue un éxito. Otra actividad que hizo el DOC fue crear un intercambio de tarjetas postales entre familias y pacientes diabéticos. Alrededor de 530 personas participaron de este intercambio, Jaime envió postales a Canadá, Australia, Reino Unido y varios estados de los Estados Unidos. De igual manera él recibió tarjetas de estos niños, la carita de emoción de Jaime al leer cada postal fue de gran valor. Inclusive hasta una nueva amiguita por correspondencia hizo. Esta actividad nos relaciona con otras personas y crea un lazo muy fuerte entre los pacientes.

Me siento muy orgullosa de pertenecer a una comunidad tan activa y deseosa de trabajar. Una comunidad abierta a recibirte, dispuesta a ayudarte y compartir entre si educación, información y sobretodo apoyo. No estamos solos, hay toda una comunidad que con mucho gusto y placer te darán la mano cuando lo necesites.

***

Mila, gracias por compartir tu blog con mis lectores y por su amistad en elDOC. Mejor de mí, Scott (lo siento, pero tuve que usar Google Translate,espero que funcionó!)

Thursday
Nov172011

Untitled Giving Project Update#1

It's been 14 days since I wrote about my want to launch a charitable foundation to provide insulin pumps and continuous glucose monitors to children that need but can not afford them. 14 days

A very lot can apparently happen in 14 days...

The Diabetes Online Community has fully embraced my goal and I thank you! Monetary gifts, offers to help and professionals wanting to donate their services have all been pouring in. I've made new connections and had conversations that can only be characterized as uplifting. I've received gifts great enough to pay for the initial paperwork filing and am currently in discussions with an attorney about how to best move forward. I won't stop you from leaving a gift today but I will say that, for the moment, we've reached out initial goal! Please take a moment and reflect on what an amazing place the DOC is, I'm proud to be even a small part of it and I hope you are as well.

 

  • If all goes well I'll be able to announce the name of the future charity very soon. 
  • Wonderful offers to guest post on Six Until Me and The Girl with the Portable Pancreas have helped get the word out.
  • I'm diligently working at acquiring corporate sponsorship for the charity, having already made my first pitch yesterday. (If your company is interested please reach out)
  • I'm currently crafting a mission statement and can not wait to be able to tell you more.

 

Thank you for being the amazing group of people that you are! Wait until you see what we do when we band together...

I'll be back with more news as soon as I can.

Best,

Scott