4 am Scavenger Hunt

I'm not embarrassed to tell you that more than a few times a year I fall sound to sleep on our sofa while trying to watch television at night. I am however embarrassed to admit that a handful of those times I am so stone cold tired that my wife can't wake me up to go to bed. This is apparently my signal to Kelly that I need a night off from BG patrol and she always, no matter how tired she may be, picks up the reigns and carries on.

One thing these nights seem to have in common, I always wake up a bit disoriented around 4 am, usually with pillows pilled on top of me acting as a blanket. 

Last week when this happened to me I woke on schedule around 4 am, stumble to the second floor and went directly to Arden's room to check on her. I picked up her DexCom, saw that she needed a small temp basal and reached for her bag but it wasn't where I expected it to be. I found my phone, realized I didn't have a flashlight app and proceeded to download one from the App Store.

This is the exact moment when all of this would get funny

There I was standing in the doorway of Arden's room, leisurely browsing the flashlight apps because I didn't want to download one that I would regret later - which is of course ridiculous. My hair was standing straight up, my shorts were twisted about 180º counterclockwise around my waist and I was incredibly thirsty, but in my exhausted daze I couldn't let go of the feeling that I didn't want to download an inferior flashlight app. This process took a few minutes and then I set out, armed with my new flashlight, to find Arden's bag that holds her OmniPod PDM, MultiClix lance, test strips and all of the rest. 

I quick scan told me that it wasn't in her room, "must be with Kelly" I thought. It wasn't. So I headed back to the first floor where I finally found Arden's bag under a pillow on a chair in our living room. I walked back upstairs, opened the bag and found that it only contained test strips. I laughed to myself and I made my way back downstairs. I won't bore you with every detail of the next twenty minutes but sufficed to say that the contents belonging in that bag could not have been more spread out throughout our home. 

Our poor dog Indy looked quite cross when I finally gave up on my new flashlight app and turned on all of the lights in the living room.  When I finally set the temp basal rate and went to crawl into my bed, I realized that I never folded the laundry that I put on the bed earlier in the day. One more trip around the second floor netted me a laundry basket large enough to hold the clean clothes... and I was finally off to dreamland. 

If only I wasn't wide awake from my scavenger hunt...

Suite D

The first installment of my series on helping children with diabetes gain independence through technology is live on Suite D. This six part collection is centered on the process that we use to manage Arden's BGs while she is away from our home at school, sleep overs and other long-term visits.

Suite D is a diabetes blog that is owned and operated by Insulet, the makers of OmniPod. I was compensated for my writing but please know that I was not asked, nor would I ever let this effect my opinions about the OmniPod insulin pump. Arden's Day and the relationship that you and I have together means far more to me than any freelance writing work. You can always trust that I am giving my honest opinions whether you hear my words here or somewhere else. Your safety, my integrity and the sanctity of the diabetes online community are paramount in my mind, always. I hope you enjoy the series!

Small World

Kelly, Arden and Cole went to a movie the other day while I stayed home to write. They were gone just a little over an hour when I received a text from Kelly, she was concerned that Arden's canula had become dislodged. Arden's BG was rocketing in the darkened theater and Kelly thought that I should bring some insulin and a needle.

With two syringes and a vial of Apidra in my pocket, I approached the customer service counter at our local multiplex expecting to find someone who wouldn't understand why I needed to enter the building without buying a ticket. When it was my turn a young lady asked if she could help me and I said, "My daughter is in theater fourteen, her insulin pump isn't working and I'm here to give her an injection". Before I could tell her that I would only be in the building for a few moments she said, "No problem, go right in". I have to admit that I thought her lack of resistance was because she heard some "medical words" and didn't want to get involved.

I texted Arden, she came into the lobby to meet me, we tested and shot right there on the bench. Our entire interaction lasted maybe four minutes.

On my way out I waved to the girl so she would know I was leaving. To my surprise she called to me and asked which pump Arden uses. I told her OmniPod and she responded, "Oh, the one without the tubing... how do you like it?". Now this girl was perhaps nineteen and I could only think of one way that she would know that so I said, "How old were you?".

The lovely CSR told me that she was diagnosed when she was nine and then asked about Arden. "Just after her second birthday", I answered. The girl smiled and said, "She has me beat!".

We exchanged pleasantries before I said, "Small world". Turns out that the pod was delivering insulin just fine though Arden did need the insulin that we injected. I think maybe the entire trip was just the universe's way of letting me meet a happy, polite and thoughtful young girl who has type I diabetes. I smiled all the way to my car.

Karma Ebbs, Karma Flows

As you read keep this thought in the back of your mind... "The story is about a juice box that saved the day"

This story begins weeks ago on a day that was one hundred and fifty percent unlike any day that I've ever experienced. I woke up early that morning to travel to New York City to be part of a panel of stay-at-home dads for an episode of the Katie Couric Show. A shiny black car arrived early that morning to transport me for a few hours to a world that I'd never before seen. Green rooms, backstage areas, even people styling my hair and applying makeup to my face - it was strange, fun and more than a bit exciting. When my time on television was over, I climbed back into the shiny chariot only to find an email from the National Basketball Association that featured a story about me. I read the article (written by the DOC's own Moira McCarthy) and then closed my eyes for a few minutes because I was already exhausted from the day. I needed to catch a bit of sleep on the ride home because this crazy day wasn't nearly over, I still had to sign books at a Barnes and Noble in Philadelphia that evening, like I said before... a day like no other.

So to recap the morning... Fancy black cars, Katie Couric, I met Steve Schirripa from the 'Sopranos' in the makeup room, joking in front a a live studio audience and a my name on an NBA email blast that landed in a half of a million inboxes across the country. And in a few hours I was going to get to sit in a book store and sign my book. All extraordinary stuff that no one imagines will ever happen to them, and it was happening to me all on the same day.

The book signing went great, one of the real highlights was when I met a gentleman who reads Arden's Day and his son. The best part of the night? Arden came with me to the signing. Perhaps this book writing thing will lead to more and maybe it won't, but for a few hours that night my little girl got to sit next to her dad as he signed his name in a book he wrote. You don't get too many opportunities in life to be a hero to your kids, this day was special. 

As Arden and I drove home that night through a teeming rain storm, we talked about the day. She asked me about what it was like to tape a TV show and we anxiously spoke about what the vacation that we were leaving for in two days would be like. It was as we were talking about our impending trip that I saw a small group of children standing on the side of the road. I instantly wondered why they were outside in the rain and it was so late at night. Then I got my answer out of the corner of my eye when I witnessed one of the kids reaching back as if they were going to throw something. I remember thinking, "Aw fu$k...". 

Bang, pop, thump, thump, bang, bang, crash...

The right side of my car was being pelted by hooligans, malcontents I tell ya... We were under attack. I stood on the side of the road staring through the rain hoping that I could see one of the little bastards, but they were gone. Arden was frightened, I was angry and the rain wasn't giving up, so I got back into the car and we went home. I stood in the rain washing my car and wondering what the light of the next day would reveal. When I woke the next day I was greeted by multiple and significant points of damage. I informed our insurance company and we left for our vacation.

Fast forward to yesterday...

This morning the insurance adjuster came to our house to assess the damage. A few minutes before the adjuster was finished, Arden wandered outside with that "just woke up" look on her face to find out what was happening. As she was fresh from her bedroom, Arden had her bag full of D-Tech with her. OmniPod PDM, DexCom receiver, MultiClix and a juice box all in a small leather purse. She set the bag down on a box in our garage and walked over to me to find out what was going on. Arden and I decided to pass the time as we waited for the gentleman's assessment by cleaning up the garage and taking the recycling down to the corner. 

Soon enough the adjuster finished and I asked Arden to move out of the way so I could put my car back into the garage, but she wanted to ride with me for the ten foot trip and so she climbed into the passenger side instead.

Moments before I was joking with the insurance guy about the day that my car was attacked. I told him that I must have used up all of my allotted good karma when I found myself on TV and at a book signing all on the same day. He laughed and as I sat down in my car to put it back into the garage, I quipped through the window, "I guess the universe was rebalancing itself when those kids pelted us". Then Arden and I drove forward...

POP!

I jammed on the brakes and my stomach dropped as I remembered leaving Arden's bag on the floor when we took the recycling to the street. I backed up slowly and Arden jumped out to see what made the loud pop but I already knew it was her bag. I felt sick when I realized that I drove over her PDM and DexCom receiver. I thought I was going to throw up... But it turns out that the pelting my car took all those weeks before must have been an overcorrection, and it seems that the universe owed my a credit. 

It was a juice box that exploded and acted as a warning signal to stop. Not only that but the juice was in a separate compartment so none of it got on the electronics. I was about to drive right over Arden's PDM, DexCom, MultiClix, and her bag but that little juice box happened to be on one end of the small bag while all of her gadgets were on the other. Thankfully, the juice was closer to the tire than the electronics and they remained untouched by my car's tire. 

Karma ebbs, Karma flows...

Arden pulled her gadgets from the bag and placed them onto the seat that she just vacated and said, "Well... this is the first time that I don't hate those juice boxes". ––– I thought to myself, "Me too".

(Almost) Up in the Air

How many OmniPods would you take on a ten day vacation?

If you were going to leave your home early one morning and drive over an hour to an airport to catch a four hour flight, one that would take you to a remote island location for ten days... how may OmniPods would you bring?

I brought eleven

I also brought two hundred test strips, an extra MultiClix, an entire package of lancet cartridges, one backup OmniPod PDM, a ketone meter with a 50 strips, two glucogon kits, four vials of Apidra, five DexCom sensors, a brick of juice boxes, candy, fast acting glucose tablets, five packages of needles, FlexiFix, AAA batteries, a DexCom charger and three copies of the travel letter that our endo wrote.

Other than the fact that everyone was a mix of exhausted (long year) and excited (we never go on vacations like this), our flight to the Caribbean was uneventful. The TSA experience in New York was fast, pleasant and so accommodating that the multiple juice boxes we brought through screening were treated like medication. Actually, for the first nine and a half days of this vacation all of my extra supply preparation was unnecessary. We never had one issue with our D technology, sensors stayed on, insulin resisted the heat and diabetes was a perfectly behaved travel partner.

It wasn't until we were literally walking out of the door to return home from our island getaway that things began to go the other way. I knew that the odds were stacked against us, I mean, how often do you get to go ten days without a significant diabetes issue that requires your inner MacGyver?

During travel, I keep enough supplies in my carry on bag to complete one site change. The bag also contains enough insulin and needles to manage for a full day without needing the backup supplies that are in my larger luggage. I lug that stuff with me when we fly with the hopes that I'll never need it.

Was it an omen, probably not... I don't believe in omens, but I did drop a vial of insulin as I was packaging the Apidra back into it's ice pack for the trip home. Fun Fact: I've never broken a vial of insulin until the one in my hand hit the stone floor of our rental home. No matter, I had three more. #prepared

We drove our rental jeep to the ferry, made the short trip from island to island and then jumped into a taxi destine for the airport. It was during that taxi ride that Arden's BG got a little squirrelly, I bolused. TSA was again a dream and before we knew it our bags were off to the belly of the plane. All that was left to do was to grab a pre-flight meal and wait to board. We ate, found our way to the correct gate and planted ourselves in some soft chairs. 

Ferry Departure

BEEP BEEP goes the DexCom

"I must have miscalculated the airport food", that's what I thought when Arden's CGM indicated that her BG was rising thirty minutes after our meal. I reassessed and added more insulin but the beeping continued, soon after the arrows changed from diagonal up to one arrow straight up. Before long, the arrow found a friend... two arrows up. Hmmm, WTF!? Turns out that Arden must have unknowingly banged her leg into something during our trip from paradise to the airport, I noticed a tear on the OmniPod adhesive and the canula looked withdrawn. Interestingly, on the same day that I dropped my first vial of insulin our first canula became dislodged. What a diabetes day we were having, I wonder what could make it even odder? How about my first airport pod change at gate 4. Honestly, it didn't bother me to change the pod there and Arden didn't care... she isn't shy about diabetes in public. So I balanced everything on my lap and set what didn't fit on my leg behind Kelly on the chair next to me. I filled the pod, primed, inserted and removed the old device in a few moments. We tested, increased Arden's basal rate and then busted out a good ole' fashioned needle to combat her wildly high BG of 425. 

I'll admit that I was a bit panicky for a moment, the notion of chasing this high number in the air dind't sit well but then I remembered that we had a full complement of juice and other items. I did experience a wave of dread as I used the only spare pod that I had in my carry on bag. I began to run through scenarios in my mind, how I could talk TSA into retrieving my luggage from the plane so I could get more? But then I calmed down, we boarded the island way (see pic at top) and a number of hours later we landed at JFK airport where Arden's BG was 113. Seems Ben Franklin was correct, An ounce of prevention is worth a pound of cure. Smart guy. I may not be Franklin but I know this for sure... Bring extra supplies when you travel, you never know what may happen.

Luckily, we can only afford to go on a trip like this once a decade, so I have time to rest and recover!

Finally, here are some obligatory vacation photos.