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Entries in Perspective (21)

Tuesday
May212013

Oklahoma Tornado

Paul Hellstern - Oklahoma APLast night this photo of two teachers leading children to safety brought tears to my eyes and sent me racing to my computer to make a donation to the American Red Cross and the Salvation Army.

Today, I've preempted my blog piece about delivering insulin in difficult carb counting situations to pass on information on how you can send relief to the people whose lives where destroyed in yesterday's tornado. I encourage you to make a donation of any size if you are able and please make your friends, both online and IRL, aware of how easy it is to send help. 

 

American Red Cross

Text REDCROSS to 90999 to give $10 to American Red Cross Disaster Relief, donate online, or donate by phone at 1-800-RED CROSS.

 

Salvation Army

Text STORM to 80888 to contribute $10 to the Salvation Army's relief efforts or make a donation by phone at 1-800-SAL-ARMY. If you're sending a check make sure you put the words "Oklahoma Tornado Relief" on the check, and mail it to: The Salvation Army, P.O. Box 12600, Oklahoma City, OK., 73157. Online donations are accepted here.

 

Thursday
May092013

Tears of Insulin

images courtesy of Lilly Diabetes

Recently, I attended the 2013 Lilly Diabetes Blogger Summit in Indianapolis, Indiana. One part of the visit allowed us to witness insulin being manufactured and I'm here to tell you that the experience brought me to tears.

Maybe it was the overwhelming feeling that Arden couldn't live without the concoction or perhaps it was when I realized how many dedicated people it takes to make the insulin that Arden needs so desperately. I'm still not completely sure why the sight of insulin production was so moving to me. All I can tell you is that as those little glass vials were zooming past me and as I watched the mechanical arm fill them, I cried. There I was in a viewing room with my fellow D-Bloggers, all of us clad in hairnets, masks and gowns, when tears suddenly began to roll down my cheeks.

Arden doesn't even use Lilly's insulin and still the thought of this place existing was too powerful for me to ignore. So many people that I love, and so many of you that I call friends depend on places like this. I never really thought about it before, never considered the scope and effort that went into the production of insulin. It was amazing and overwhelming to behold. "Arden wouldn't be here today without out companies like Lilly", I thought as I watched the vials fly by... Then I looked around the room and saw so many friends and fellow D-bloggers who all could make similar statements about loved ones and themselves.

I found the hours that we spent on the production floor to be altering, they filled me with gratitude and humility. Diabetes did it again, just when I thought that my perspective on life was as clear as it could possibly get, diabetes brought things into even tighter focus.

This visit was as close to spiritual for me as anything that I've ever experienced. I went to the place that makes the very substance that my daughter needs to stay alive. What an amazing day, what an honor!

Lilly Diabetes invited and paid for me to attend the 2013 summit. Airfare, lodging, food and transportation was all covered by Lilly. I did buy a jammin' lemon pound cake slice for myself at the airport. They never asked me to write about my experience or in any way tried to sway my opinions.

Tuesday
Sep042012

My Guest post at 'The Life of a Diabetic'

Chris at 'The Life of a Diabetic' is running a 'Diabetes Parenting Week' feature on his blog and he was kind enough to ask me to contribute. The piece I wrote titled, 'Letting your Kids be Kids even with Diabetes' kicks off the week today. 

I wasn't just excited to be a part of what Chris is doing becasue he's a good guy and I like his blog, though that was part of my decision making process. Mainly, I love the idea of blogs that are mostly read by PWD hearing a little bit about the CareGiver side of type I diabetes. I hope you enjoy my take on the subject and if you can, please take a moment to let Chris know that you found his site through 'Arden's Day'.

My back to school posts will begin later this week as Arden doesn't go back to school for a few more days.

Talk to you soon, Scott

 

Friday
Jun222012

"Diabetes", a poem by Arden

Arden's Poem, "Diabetes" I found this poem in Arden's writer's notebook at the end of the school year and I wanted to share it with all of you. I asked Arden and she gave me permission to post it. I believe that these are the first words on Arden's Day to come directly from Arden.

So without further ado and transcribed exactly as she wrote it... I present, "Diabetes" a poem by Arden, age seven.

 

Diabetes

Why did you pick me?

Why's diabetes diabetes?

How did diabetes get here?

Why is diabetes called diabetes?

Why is there type one diabetes

and type 2 diabetes.

How did diabetes get in life?

Why are you here?

I'm not scared of you evean

that something could

haping!

Friday
Jun082012

Exercise and type I diabetes blood glucose control

Arden followed in her brother's footsteps last week when she tried out and was selected to play on our town's all star softball team. Yea Arden! The girls have been practicing each night since and I am learning more about blood glucose control before, after and during exercise then could have imagined.

Her second at bat.

First thing I learned is that all of Arden's activities from the past don't put nearly the strain on her system that an intensive two hour practice/game brings to her. Arden experienced a latent low in the early hours of the morning that followed her first practice. It was nearly eight hours since that practice began when her BG suddenly dropped. I couldn't cut off the fall by suspending her basal so I woke her up to drink a juice box. Normally I can fend off lows at night with a temp basal, this was different, a more powerful drop. I was awake and ready for it because I expected it but if I hadn't been, there is no telling how low she may have gotten.

So the next night I was ready! I kept her BG a little high before bed and didn't cover a small snack after practice. This turned out to be a winning combination. Night two went well.

On the third night I tried to mimic the success from the evening before but it turned out that a new site on her leg wasn't working the way I expected. When I combined keeping her BG a little high with a small snack and a site that wasn't up to snuff, I got a high BG that wouldn't come down easily. Hindsight has me wondering if the leg site was perhaps less effective because of the large amounts of running that she has been doing, as they normally work very well.

After I moved the OmniPod to her abdomen the next few nights went as planned, however I had to put quite a lot of effort into keeping things balanced. These last few weeks haven't just proved to me that strenuous activity can cause a low but that high BGs effect athletic performance. I noticed that if Arden's BG gets too high that her speed seems to diminish (I hope that you can share your experiences with me in the comments about this). Normally a very fast runner, Arden couldn't perform as she usually does if her BG began to rise above 220. I think that I also saw a decrease in her hand-eye coordination during this elevated period.

Last night before her first game I tried very hard to keep her BG around 100 before game time. I added carbs as the game was about to begin, a few slow acting and about 15 grams of juice. I was hoping to keep her steady without going too high during the game. I was able to do this with a lot of help from her DexCom CGM and she never went above 190 but wow was it a lot of work... though totally worth it to see her have such a good time.

This first game didn't just teach us more about type I diabetes, it also gave us our first look at Arden's competitive nature in a sporting moment that she regards as very important. Arden took this game seriously, she had fun but playing well was definitely high on her list of priorities. It goes without saying but we are very proud of Arden and the extra effort that is required for her to participate makes that pride shine just a little brighter.

Your child can definitely play sports at a competitive level with type I diabetes, that fact was never in question. All you have to do is give the moment the forethought and preparation that it requires, it'll be tough at first and you may spend a night or two battling lows but once you have a system in place it's not unlike the rest of your days with diabetes. You can do this.

Have fun out there!

 

One of the two outs Arden recorded in her first game.