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Wednesday
Feb112009

Here we go!

On Thursday February 12th at 1 pm Arden will officially begin using the OmniPod insulin pump!  If all goes as planned... tomorrow will mark the end of Arden suffering through seven or more needle sticks a day.  Yes she will still have to test her BG with a finger stick but eliminating needles will bring her some much deserved relief.  I estimate that Arden has received 7,000 injections since her diagnosis.  Her injection sites have taken about as much as they can.  

 

I’m anticipating that the next three weeks will be very intensive as I work with the pump team at CHOP to fine tune the pump and it’s insulin delivery.  Keep checking back for updates, I’ll be using the site as a diary to help myself keep track of this transition.

Wednesday
Feb112009

Send a thank you to Obama

President Obama recently said that he, “guarantees” that he will sign an executive order overturning President Bush’s policy on stem cell research.  I guess that it goes without saying that our family is thrilled that diabetes research will soon have the full support of the US government.  If you are similarly minded please take a moment to thank President Obama for his his full-throated support by using the links provided in the letter from the JDRF (below).  

 

The following is from the JDRF:

 

Greetings Fellow Advocates--

Below you will find a link to an action alert in support of an executive order withdrawing limitations on federal funding for stem cell research. For those of you who are new to our advocacy base, the ban that will be lifted will allow scientists to receive federal funding for what is considered to be our best hope for a cure for Type 1 diabetes and a host of other diseases.

Thank the President for His Stem Cell Research Support!

As this is our first contact with the Obama administration, it is vital that we have our voices heard in support of his signing this executive order.  Please respond to this alert by clicking here.  The entire process will take less than 60 seconds to complete and send.  It will also help our cause if you pass this along to your contacts.  And always remember that all communication with the White House and your legislators are counted and are vital in our quest to find a cure.

You can read what the President had to say about stem cell research and his executive order by clicking herePlease send your message TODAY and encourage others to join you in thanking the President!

Warmest Regards,

Fred Sacks, New Jersey State Chair (and the father of a son with Juvenile Diabetes) 
JDRF Int'l Government Relations

Wednesday
Feb112009

Alberta Diabetes Update 

Just a quick update from our friends in Canada.  The Alberta Diabetes Foundation will be sending another brochure based on Arden out soon.  Brooke at ADF has recreated one of my blog posts for this mailer, I’ve seen the mock up and it’s really fantastic.  I’ll post the final version here when it is finished.  

 

The ADF has also asked Arden to participate in a video style PSA... more on that as it develops.

Sunday
Feb082009

JDRF Awards

Sunday was the JDRF’s Awards & Recognition luncheon at Citizens Bank Park.  You may remember that Arden won the Golden Sneaker Award in 2007 (shown above).  In 2007 Arden’s walk team raised over $10,000 to fund type I diabetes research!

 

Arden’s walk team was again recognized this year for it’s efforts.  Walk for Arden was again one of Philadelphia’s largest donation generators.  Arden’s team raised over $12,000 in 2008 for type I diabetes research!  I want to take this opportunity to thank all of you that donated to her walk and to ask that you please take minute to watch the video that I’ve made chronicling our walks.  See you at the walk in 2009!

 

 

Thursday
Feb052009

Mother accused of neglect in type I death

DALLAS (AP) - The mother of a 9-year-old diabetic who died as she lay beside a bag of candy and other sweets has been accused of helping cause her death by failing to help the girl manage the disease and giving her high-glucose foods.

Georgia Lee Jones, 27, was arrested Monday after a long investigation, The Dallas Morning News reported in its Wednesday editions. The mother of five faces a felony charge of injury to a child and faces up to life in prison if convicted in the May 2 death of Chasity Butler.

"Chasity's diabetes was not monitored properly causing her to be constantly sick and in bed rather than leading a normal life like other children her age," police documents say.

Jones was released from Dallas County Jail late Tuesday on bond. A home phone number for Jones could not be found Wednesday, but her husband defended her in an interview with the Morning News.

"All in all, I believe my wife is a good mother," 30-year-old Marqus Butler said. "And she's a good woman, also."

The death was ruled natural due to diabetic complications by the Dallas County medical examiner, but according to police and state Child Protective Services reports, Jones had failed to properly treat or monitor the disease.

Police said CPS investigations showed Chasity often had to take readings of her blood glucose levels herself and give herself insulin injections or get help from a younger sister. The investigators said Jones did not adhere to diet rules, often feeding Chasity foods high in glucose like noodles and sweets.

Police say that the day before the girl died, she had stomach pain, diarrhea and vomiting. Then she did not eat that night or the next morning. Authorities say her mother checked her glucose level and found it dangerously high, but still fed her noodles and let her eat cupcakes and candy.

Days before Chasity's death, CPS inspected the home because of concerns about whether Jones was sufficiently managing Chasity's diabetes and providing enough food to the children. CPS said the sisters appeared to be in good condition and described Chasity as "upbeat" during the interview.

Butler said his daughter's July 2005 diagnosis of the Type I form of the disease came after she suffered a diabetic coma.

Police say that a week after the diagnosis, Jones was scheduled for a Diabetes 101 class, but didn't show up.

In the years following Chasity's diagnosis, CPS got reports that Jones wasn't adequately managing her daughter's disease but didn't find evidence of neglect. But police documents say that a clinic told CPS that Jones was lax about sending in blood glucose level readings that are to be taken several times a day with a device at home - and often went two to three months without sending in any readings.

Police said that when the readings were sent in, Chasity's glucose levels were dangerously high. The girl had to be hospitalized at least five times during 2006 and 2007.

CPS placed Chasity's four younger sisters, ages 2 to 8, with Butler's mother, who with her husband was given permanent custody in December.

http://m.apnews.com/ap/db_8560/contentdetail.htm?contentguid=PUqnBIqD