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Life Is Short, Laundry Is Eternal 
#8 In Fatherhood (paperback)
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#1 In Diabetes (paperback)
#6 In Diabetes (Kindle)

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Life Is Short, Laundry Is Eternal: Confessions of a Stay-at-Home Dad

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Life Is Short, Laundry Is Eternal is a Mom’s Choice Awards® Gold Recipient

Winner 2011 Advocating for Another

 

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Monday
Dec092013

Surfing Santa

So we ventured out into the snow late Sunday afternoon to check out a huge Christmas light display about thirty minutes from our house. On the way we stopped to have a quick bite, Arden tested her blood glucose and just as we were about to bolus... the batteries in her PDM went dead. I immediately looked around the restaurant for a fix, my wife told me that she saw a convenience store as we drove up, but that I would need to get back into the car to get there. Truth be told, I didn't want to go back out into the snow, but moreover, I didn't want Arden to miss her food because she was waiting for me to return with batteries. I began looking around for an answer when it hit me, the restaurant had televisions covering almost every inch of it's walls, "I bet they have a drawer full of TV remotes", I thought.

A few minutes later the bartender was pulling two triple A batteries from one of his many remotes, and Arden was back in business. The very kind bartender wouldn't even take the batteries back before we left...

The Christmas lights were a blast! I mean, were else are you going to see a giant Santa on a surf board?!

Thursday
Dec052013

Nelson Mandela: July 18, 1918 - December 5, 2013

Receiving the Nobel Peace Prize

“No one is born hating another person because of the color of his skin, or his background, or his religion. People must learn to hate, and if they can learn to hate, they can be taught to love, for love comes more naturally to the human heart than its opposite.”

- Nelson Mandela

 

Please feel free to leave your favorite Mandela qoutes in the comments section. 

Thursday
Dec052013

Diabetes Sucks

We swapped Arden's OmniPod last night after basketball practice, it was a little later in the evening then I would have liked as being tired combined with jabbing a hole into yourself, seldom goes well - but then, what does go well with piercing your skin with a needle?

After we finished, Arden asked me if I would "cuddle" with her for "ten minutes" when she went to bed, great offer, I of course said, "Yes!". 

As we climbed into bed Arden had to reposition herself a few times, she told me that it takes a little while to become accustomed to having a pod in a new site and that she was going to sleep on her side because of the placement of this pod. Even though I am aware that she uses different sleep positions based on pod placement, the look on her face as she tried to get comfortable, mixed with the mature way that she explained the annoyance, brought me a moment of melancholy. 

When we finally got comfy Arden kept talking, and she told me that she wished we didn't have to change her infusion site so often. My mind immediatly raced back to before we began using an insulin pump and those long sad days of giving my baby ten needles.

"I know it hurts", I began. Arden stopped me and made it clear that I didn't know what it felt like to have type I diabetes and then she added this exclamation to her sentence saying, "Diabetes sucks!". "You're right", I replied, "I don't know what it's like". I rephrased, "I imagine that it hurts to get stuck with a needle and I know that having it happen every three days must suck.

Do you remember when you received insulin with needles?". She did not.

I told Arden how I would give her two needles every morning when she woke up. I explained how we'd test and shoot insulin later in the morning for breakfast, how sometimes a couple of hours after a meal she would need more. Breakfast, lunch dinner and "You would eat a snack everyday around three in the afternoon and one before bed". "Did I get a needle at snack time too?", she asked. By the time I finished explaining how we managed her BGs with needles, we counted ten injection. Two in the morning (BG maintenance and slow acting), at times two for meals (Carbs and BG maintenance), an afternoon snack, evening snack and two before bed (BG maintenance and slow acting). We decided that most days she experienced about ten shots and then we did some math. When Arden realized that with injections she would get stuck about a hundred and forty times in two weeks, she looked relived. More math told us that two weeks of needle sticks was the equivalent to one year of site changes. With that news, she proclaimed that changing her pods wasn't "too bad" but, "it still sucks".

A car accident that results in a broken arm is certainly not a cancer diagnosis, but it may well be the worst thing happening in your life. Perspective is certainly very important to have, but not at the expense of your own feelings. I am elated that Arden knows that her insulin pump has made her life better without forgetting that needing to wear it, to stay alive, sucks.

I left her room feeling proud, the melancholy had left me. Diabetes may suck, but she owns it.

Tuesday
Dec032013

diaTribe Petition: Please help

from the diaTribe petition at change.org

At a recent meeting of Oregon’s Health Evidence Review Commission (HERC), the state panel recommended reducing access to test strips for people with type 2 diabetes on the Medicaid-funded Oregon Health Plan (OHP). A new plan would severely restrict access to strips for type 2 patients unless they are newly diagnosed, take insulin, or meet a few other special requirements. For people not taking insulin – which covers the vast majority, about 70% of all type 2 patients – those with an A1c above 8.0% would be entitled to one test strip per week, while those with an A1c below 8.0% would not be provided with any test strips at all. 

This recommendation would severly limit test strips and set a dangerous precedent for other states looking to cut overall health care costs. It's difficult to understand how the HERC imagines people with an A1c below 8.0% will manage their diabetes without test strips, and a test strip every week is hardly meaningful for patients or providers. Furthermore, any cost reductions will likely be more than canceled out in the long-term due to increased complications, hospital visits, and operations that inevitably folow poor control. The decision is currently scheduled for December 5. If you are a person with diabetes or a caregiver, we encourage you to sign this petition and write to Oregon Health Authority’s Director Dr. Bruce Goldberg and the members of the HERC about the importance of having access to test strips and self-monitoring blood glucose.


Read more about the issue and what you can do at diaTribe.org 

 

Add your name to the petition


Sunday
Dec012013

It's beginning to look a lot like Christmas

 

If you've read my first book, 'Life Is Short, Laundry Is Eternal' and enjoyed it,

I hope that you'll consider picking it up as a holiday gift for the readers on your list.

 

...and if you've yet to pick it up, I can't wait for you to find

'Life Is Short'... I'm so very proud of it.

 

Please consider checking out the many reader reviews on Amazon,

and Barnes & Noble, I think you'll be glad that you did!

 

 Thank you, as always, for your generous support. 

My very best, Scott 

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