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Monday
Feb222010

JDRF Walk Awards

Tomorrow is the JDRF Walk Awards, it’s held again this year at the Philadelphia Phillies stadium.  Arden will be receiving her third award for ‘Excellence in Fundraising’ this year and we are all very proud of her!  A special thanks goes out to all of you for making her  walks so successful!

 

There is a luncheon that is followed by the award ceremony and then we our taken on a tour of the stadium.

 

If you follow Arden on Twitter you may just get a picture or two tomorrow live from the awards.  

http://twitter.com/ardensday

 

UPDATE: Pictures from the day are in our Scrapbook

Thursday
Feb182010

504 Plan pt2

Part 2: Find your zen place

 

There are a few good examples of 504 plans online, I’ll link to them later (I’ll also make Arden’s available).  But let’s not jump too far ahead.

 

The first thing to understand is that you will sound like a loon (to the school) when you begin to describe how you care for your child’s type I.  It’s unavoidable, everyone except those who live with type I are likely to think that you’re an overbearing, overzealous loon.  Of course you know that you’re not and I know you aren’t, but nothing short of living with type I can convey it’s complexity... can it?

 

Since you can’t ask the school to come live with you for a weekend, how do you get them up to speed?  The answer is patiently and methodically.  Your patience will be rewarded  as the uneducated staffers begin to catch on. Don’t forget that these folks have the added burden of wanting and needing to appear in control and you are flooding them with a lot of unfamiliar, technical and jargon laden information.  You may find a nurse with a ton of experience which is great!  However, that could also lead to them wanting to do things their way for comfort’s sake.  If you have a different care plan in mind you are going to have to communicate it, perhaps multiple times.  

 

You have to resist the urge to acquiesce when faced with pressure.  They know what they know, you know how to care for your child.  Everyone is different and the schools tend to think of all type I children as the same.  There is a definite coalescing period at the onset of this process. If you loose sight of the fact that this is an adjustment for everyone, you can and will fall quickly into a righteous anger.  That anger may feel good but it won’t get you to the desired ending, which is a safe, healthy learning environment for your son or daughter. It will just get you to paying for a child advocacy attorney and years of uncomfortable daily interactions.  

 

I did well keeping this in mind... Yes the 504 act provides for my child but that doesn’t mean that the school isn’t going to react in the way that people often do when presented with change, with resistance.  I always tried to put myself in the “schools” shoes before I acted.  Remember, every time you make a request, someone has to address it and your 504 is full of requests.  It isn’t fun being asked to do more when you already feel like you do so much and the additions that you are proposing, are at their core, more things for someone to do.  These request aren’t just more work, they are scary.  Face it, it’s scary to be left in charge of our children.  The reactions you are likely to encounter initially are emotional, understandable and not at all about you or your child... you must resist the urge to respond to them in kind or things will degrade fast.  Keeping this balance without giving up your position is the crux of the entire exchange.  

 

**

The following are archived comments from this post. You can post new comments below.

Paul
I like that you used the word acquiesce in your blog.
Sunday, February 21, 2010 - 09:01 PM

 

Thursday
Feb182010

504 Plan pt1

I believe enough time has past since we put Arden’s 504 plan in place that I can speak about the process here with an even temper.  I’ll do my best to break the story up into digestible and topical bits. 

 

Please keep in mind that Arden’s school is currently doing a wonderful job of caring for her.  If at times during this blog within a blog (within a blog) it seems as if I think otherwise, I do not.  That said, I will write honestly about my experiences so that the reader can learn what to expect when setting up a 504 plan.  Our story ends well... not just well honestly, nearly perfectly.  We have administrators that are willing to learn about type I, school nurses that are empathetic and caring and a wonderful health aide.  

 

Even with good people like this to work with the road to bliss isn’t smooth.

Thursday
Feb182010

Guest blogger on the Bennet Letter

Hello,

 

Senator Michael Bennet (D-CO) has written a letter to Senator Harry Reid (D-NV) urging him to bring a vote to congress on the public option under budget reconciliation rules. Without going into great detail, the public option gives everyone an option to buy health care through the government at a lower cost than they can now from private companies.

 

     There are more then 3 million children with type I diabetes and over 40 new kids are diagnosed every day. The need for lower health care costs are clear now more than ever. The costs of caring for a child with type I diabetes for example, is astounding. Insulin and all the supplies needed to manage this horrible disease range between 3-4 thousand dollars per year, if the person has insurance. That does not include doctor and hospital visits or insulin pumps which can cost upwards of 5000 dollars. 

 

     As you can see the cost of managing type I is staggering for people with health care coverage but there are so many that can not afford proper or any insurance. Try to imagine that your child has type I and that you can’t afford to take them to see their doctor regularly. Imagine what it would be like if you weren’t able to buy the needed insulin and syringes for them let alone a pump that could better manage their blood sugar. A public option would give these people a chance. It would allow them to get the insurance so that they can get themselves and their children the care that they so desperately need.

 

     My roommate, Ray and I were proactive today, not only did we sign the petition but we called our Senators and asked them add their name to the Bennet letter. I urge you all to do the same. Everyone deserves a chance to be healthy!  Americans have a long and proud history of coming together when there is a need.  After watching Arden live with type I for the last three years I can tell you, with no reserve that politics aside, I believe that a fellow citizen’s health should never be limited by finances.  There is already so much dignity lost when you are sick, surely we can give some back.

 

Thank you for your time and attention,

Arden and Cole’s Uncle Brian

 

There are links to the Bennet Letter on our site here

Thursday
Feb182010

The Bennet Letter

Some Senators have written a letter calling on Majority Leader Harry Reid to pass the public health insurance option through reconciliation.  If you are like-minded you can add your name to a list and/or call your representatives and ask them to add their name to the Bennet letter.

 

The letter is at this link, it’s full text is below.  You can add your name and voice at this link.

 

Dear Leader Reid:

 

We respectfully ask that you bring for a vote before the full Senate a public health insurance option under budget reconciliation rules.

 

There are four fundamental reasons why we support this approach – its potential for billions of dollars in cost savings; the growing need to increase competition and lower costs for the consumer; the history of using reconciliation for significant pieces of health care legislation; and the continued public support for a public option.

A Public Option Is an Important Tool for Restoring Fiscal Discipline.

 

As Democrats, we pledged that the Senate health care reform package would address skyrocketing health care costs and relieve overburdened American families and small businesses from annual double-digit health care cost increases. And that it would do so without adding a dime to the national debt.

 

The non-partisan Congressional Budget Office (CBO) determined that the Senate health reform bill is actually better than deficit neutral. It would reduce the deficit by over $130 billion in the first ten years and up to $1 trillion in the first 20 years.

 

These cost savings are an important start. But a strong public option can be the centerpiece of an even better package of cost saving measures. CBO estimated that various public option proposals in the House save at least $25 billion. Even $1 billion in savings would qualify it for consideration under reconciliation.

Put simply, including a strong public option is one of the best, most fiscally responsible ways to reform our health insurance system.

 

A Public Option Would Provide Americans with a Low-Cost Alternative and Improve Market Competitiveness.

A strong public option would create better competition in our health insurance markets. Many Americans have no or little real choice of health insurance provider. Far too often, it’s “take it or leave it” for families and small businesses. This lack of competition drives up costs and leaves private health insurance companies with little incentive to provide quality customer service.

 

A recent Health Care for America Now report on private insurance companies found that the largest five for-profit health insurance providers made $12 billion in profits last year, yet they actually dropped 2.7 million people from coverage. Private insurance – by gouging the public even during a severe economic recession – has shown it cannot function in the public’s interest without a public alternative. Americans have nowhere to turn. That is not healthy market competition, and it is not good for the public.

 

If families or individuals like their current coverage through a private insurance company, then they can keep that coverage. And in some markets where consumers have many alternatives, a public option may be less necessary. But many local markets have broken down, with only one or two insurance providers available to consumers. Each and every health insurance market should have real choices for consumers.

 

There is a history of using reconciliation for significant pieces of health care legislation.

 

There is substantial Senate precedent for using reconciliation to enact important health care policies. The Children’s Health Insurance Program (CHIP), Medicare Advantage, and the Consolidated Omnibus Budget Reconciliation Act of 1985 (COBRA), which actually contains the term ‘reconciliation’ in its title, were all enacted under reconciliation.

 

The American Enterprise Institute’s Norman Ornstein and Brookings’ Thomas Mann and Molly Reynolds jointly wrote, “Are Democrats making an egregious power grab by sidestepping the filibuster? Hardly.” They continued that the precedent for using reconciliation to enact major policy changes is “much more extensive . . . than Senate Republicans are willing to admit these days.”

There is strong public support for a public option, across party lines.

 

The overwhelming majority of Americans want a public option. The latest New York Times poll on this issue, in December, shows that despite the attacks of recent months Americans support the public option 59% to 29%. Support includes 80% of Democrats, 59% of Independents, and even 33% of Republicans.

 

Much of the public identifies a public option as the key component of health care reform -- and as the best thing we can do to stand up for regular people against big insurance companies. In fact, overall support for health care reform declined steadily as the public option was removed from reform legislation.

 

Although we strongly support the important reforms made by the Senate-passed health reform package, including a strong public option would improve both its substance and the public’s perception of it. The Senate has an obligation to reform our unworkable health insurance market -- both to reduce costs and to give consumers more choices. A strong public option is the best way to deliver on both of these goals, and we urge its consideration under reconciliation rules.

Respectfully,

Some Senators have written a letter calling on Majority Leader Harry Reid to pass the public health insurance option through reconciliation.  If you are like-minded you can add your name to a list and/or call your representatives and ask them to add their name to the Bennet letter.

 

The letter is at this link, it’s full text is below.  You can add your name and voice at this link.

 

Dear Leader Reid:

 

We respectfully ask that you bring for a vote before the full Senate a public health insurance option under budget reconciliation rules.

 

There are four fundamental reasons why we support this approach – its potential for billions of dollars in cost savings; the growing need to increase competition and lower costs for the consumer; the history of using reconciliation for significant pieces of health care legislation; and the continued public support for a public option.

A Public Option Is an Important Tool for Restoring Fiscal Discipline.

 

As Democrats, we pledged that the Senate health care reform package would address skyrocketing health care costs and relieve overburdened American families and small businesses from annual double-digit health care cost increases. And that it would do so without adding a dime to the national debt.

 

The non-partisan Congressional Budget Office (CBO) determined that the Senate health reform bill is actually better than deficit neutral. It would reduce the deficit by over $130 billion in the first ten years and up to $1 trillion in the first 20 years.

 

These cost savings are an important start. But a strong public option can be the centerpiece of an even better package of cost saving measures. CBO estimated that various public option proposals in the House save at least $25 billion. Even $1 billion in savings would qualify it for consideration under reconciliation.

Put simply, including a strong public option is one of the best, most fiscally responsible ways to reform our health insurance system.

 

A Public Option Would Provide Americans with a Low-Cost Alternative and Improve Market Competitiveness.

A strong public option would create better competition in our health insurance markets. Many Americans have no or little real choice of health insurance provider. Far too often, it’s “take it or leave it” for families and small businesses. This lack of competition drives up costs and leaves private health insurance companies with little incentive to provide quality customer service.

 

A recent Health Care for America Now report on private insurance companies found that the largest five for-profit health insurance providers made $12 billion in profits last year, yet they actually dropped 2.7 million people from coverage. Private insurance – by gouging the public even during a severe economic recession – has shown it cannot function in the public’s interest without a public alternative. Americans have nowhere to turn. That is not healthy market competition, and it is not good for the public.

 

If families or individuals like their current coverage through a private insurance company, then they can keep that coverage. And in some markets where consumers have many alternatives, a public option may be less necessary. But many local markets have broken down, with only one or two insurance providers available to consumers. Each and every health insurance market should have real choices for consumers.

 

There is a history of using reconciliation for significant pieces of health care legislation.

 

There is substantial Senate precedent for using reconciliation to enact important health care policies. The Children’s Health Insurance Program (CHIP), Medicare Advantage, and the Consolidated Omnibus Budget Reconciliation Act of 1985 (COBRA), which actually contains the term ‘reconciliation’ in its title, were all enacted under reconciliation.

 

The American Enterprise Institute’s Norman Ornstein and Brookings’ Thomas Mann and Molly Reynolds jointly wrote, “Are Democrats making an egregious power grab by sidestepping the filibuster? Hardly.” They continued that the precedent for using reconciliation to enact major policy changes is “much more extensive . . . than Senate Republicans are willing to admit these days.”

There is strong public support for a public option, across party lines.

 

The overwhelming majority of Americans want a public option. The latest New York Times poll on this issue, in December, shows that despite the attacks of recent months Americans support the public option 59% to 29%. Support includes 80% of Democrats, 59% of Independents, and even 33% of Republicans.

 

Much of the public identifies a public option as the key component of health care reform -- and as the best thing we can do to stand up for regular people against big insurance companies. In fact, overall support for health care reform declined steadily as the public option was removed from reform legislation.

 

Although we strongly support the important reforms made by the Senate-passed health reform package, including a strong public option would improve both its substance and the public’s perception of it. The Senate has an obligation to reform our unworkable health insurance market -- both to reduce costs and to give consumers more choices. A strong public option is the best way to deliver on both of these goals, and we urge its consideration under reconciliation rules.

Respectfully,

Some Senators have written a letter calling on Majority Leader Harry Reid to pass the public health insurance option through reconciliation.  If you are like-minded you can add your name to a list and/or call your representatives and ask them to add their name to the Bennet letter.

 

The letter is at this link, it’s full text is below.  You can add your name and voice at this link.

 

Dear Leader Reid:

 

We respectfully ask that you bring for a vote before the full Senate a public health insurance option under budget reconciliation rules.

 

There are four fundamental reasons why we support this approach – its potential for billions of dollars in cost savings; the growing need to increase competition and lower costs for the consumer; the history of using reconciliation for significant pieces of health care legislation; and the continued public support for a public option.

A Public Option Is an Important Tool for Restoring Fiscal Discipline.

 

As Democrats, we pledged that the Senate health care reform package would address skyrocketing health care costs and relieve overburdened American families and small businesses from annual double-digit health care cost increases. And that it would do so without adding a dime to the national debt.

 

The non-partisan Congressional Budget Office (CBO) determined that the Senate health reform bill is actually better than deficit neutral. It would reduce the deficit by over $130 billion in the first ten years and up to $1 trillion in the first 20 years.

 

These cost savings are an important start. But a strong public option can be the centerpiece of an even better package of cost saving measures. CBO estimated that various public option proposals in the House save at least $25 billion. Even $1 billion in savings would qualify it for consideration under reconciliation.

Put simply, including a strong public option is one of the best, most fiscally responsible ways to reform our health insurance system.

 

A Public Option Would Provide Americans with a Low-Cost Alternative and Improve Market Competitiveness.

A strong public option would create better competition in our health insurance markets. Many Americans have no or little real choice of health insurance provider. Far too often, it’s “take it or leave it” for families and small businesses. This lack of competition drives up costs and leaves private health insurance companies with little incentive to provide quality customer service.

 

A recent Health Care for America Now report on private insurance companies found that the largest five for-profit health insurance providers made $12 billion in profits last year, yet they actually dropped 2.7 million people from coverage. Private insurance – by gouging the public even during a severe economic recession – has shown it cannot function in the public’s interest without a public alternative. Americans have nowhere to turn. That is not healthy market competition, and it is not good for the public.

 

If families or individuals like their current coverage through a private insurance company, then they can keep that coverage. And in some markets where consumers have many alternatives, a public option may be less necessary. But many local markets have broken down, with only one or two insurance providers available to consumers. Each and every health insurance market should have real choices for consumers.

 

There is a history of using reconciliation for significant pieces of health care legislation.

 

There is substantial Senate precedent for using reconciliation to enact important health care policies. The Children’s Health Insurance Program (CHIP), Medicare Advantage, and the Consolidated Omnibus Budget Reconciliation Act of 1985 (COBRA), which actually contains the term ‘reconciliation’ in its title, were all enacted under reconciliation.

 

The American Enterprise Institute’s Norman Ornstein and Brookings’ Thomas Mann and Molly Reynolds jointly wrote, “Are Democrats making an egregious power grab by sidestepping the filibuster? Hardly.” They continued that the precedent for using reconciliation to enact major policy changes is “much more extensive . . . than Senate Republicans are willing to admit these days.”

There is strong public support for a public option, across party lines.

 

The overwhelming majority of Americans want a public option. The latest New York Times poll on this issue, in December, shows that despite the attacks of recent months Americans support the public option 59% to 29%. Support includes 80% of Democrats, 59% of Independents, and even 33% of Republicans.

 

Much of the public identifies a public option as the key component of health care reform -- and as the best thing we can do to stand up for regular people against big insurance companies. In fact, overall support for health care reform declined steadily as the public option was removed from reform legislation.

 

Although we strongly support the important reforms made by the Senate-passed health reform package, including a strong public option would improve both its substance and the public’s perception of it. The Senate has an obligation to reform our unworkable health insurance market -- both to reduce costs and to give consumers more choices. A strong public option is the best way to deliver on both of these goals, and we urge its consideration under reconciliation rules.

Respectfully,

Some Senators have written a letter calling on Majority Leader Harry Reid to pass the public health insurance option through reconciliation.  If you are like-minded you can add your name to a list and/or call your representatives and ask them to add their name to the Bennet letter.

 

The letter is at this link, it’s full text is below.  You can add your name and voice at this link.

 

Dear Leader Reid:

 

We respectfully ask that you bring for a vote before the full Senate a public health insurance option under budget reconciliation rules.

 

There are four fundamental reasons why we support this approach – its potential for billions of dollars in cost savings; the growing need to increase competition and lower costs for the consumer; the history of using reconciliation for significant pieces of health care legislation; and the continued public support for a public option.

A Public Option Is an Important Tool for Restoring Fiscal Discipline.

 

As Democrats, we pledged that the Senate health care reform package would address skyrocketing health care costs and relieve overburdened American families and small businesses from annual double-digit health care cost increases. And that it would do so without adding a dime to the national debt.

 

The non-partisan Congressional Budget Office (CBO) determined that the Senate health reform bill is actually better than deficit neutral. It would reduce the deficit by over $130 billion in the first ten years and up to $1 trillion in the first 20 years.

 

These cost savings are an important start. But a strong public option can be the centerpiece of an even better package of cost saving measures. CBO estimated that various public option proposals in the House save at least $25 billion. Even $1 billion in savings would qualify it for consideration under reconciliation.

Put simply, including a strong public option is one of the best, most fiscally responsible ways to reform our health insurance system.

 

A Public Option Would Provide Americans with a Low-Cost Alternative and Improve Market Competitiveness.

A strong public option would create better competition in our health insurance markets. Many Americans have no or little real choice of health insurance provider. Far too often, it’s “take it or leave it” for families and small businesses. This lack of competition drives up costs and leaves private health insurance companies with little incentive to provide quality customer service.

 

A recent Health Care for America Now report on private insurance companies found that the largest five for-profit health insurance providers made $12 billion in profits last year, yet they actually dropped 2.7 million people from coverage. Private insurance – by gouging the public even during a severe economic recession – has shown it cannot function in the public’s interest without a public alternative. Americans have nowhere to turn. That is not healthy market competition, and it is not good for the public.

 

If families or individuals like their current coverage through a private insurance company, then they can keep that coverage. And in some markets where consumers have many alternatives, a public option may be less necessary. But many local markets have broken down, with only one or two insurance providers available to consumers. Each and every health insurance market should have real choices for consumers.

 

There is a history of using reconciliation for significant pieces of health care legislation.

 

There is substantial Senate precedent for using reconciliation to enact important health care policies. The Children’s Health Insurance Program (CHIP), Medicare Advantage, and the Consolidated Omnibus Budget Reconciliation Act of 1985 (COBRA), which actually contains the term ‘reconciliation’ in its title, were all enacted under reconciliation.

 

The American Enterprise Institute’s Norman Ornstein and Brookings’ Thomas Mann and Molly Reynolds jointly wrote, “Are Democrats making an egregious power grab by sidestepping the filibuster? Hardly.” They continued that the precedent for using reconciliation to enact major policy changes is “much more extensive . . . than Senate Republicans are willing to admit these days.”

There is strong public support for a public option, across party lines.

 

The overwhelming majority of Americans want a public option. The latest New York Times poll on this issue, in December, shows that despite the attacks of recent months Americans support the public option 59% to 29%. Support includes 80% of Democrats, 59% of Independents, and even 33% of Republicans.

 

Much of the public identifies a public option as the key component of health care reform -- and as the best thing we can do to stand up for regular people against big insurance companies. In fact, overall support for health care reform declined steadily as the public option was removed from reform legislation.

 

Although we strongly support the important reforms made by the Senate-passed health reform package, including a strong public option would improve both its substance and the public’s perception of it. The Senate has an obligation to reform our unworkable health insurance market -- both to reduce costs and to give consumers more choices. A strong public option is the best way to deliver on both of these goals, and we urge its consideration under reconciliation rules.

Respectfully,