Arden Describes a Seizure

We had the camera out for something else when Arden suddenly started to talk about a seizure that she had.

New Video Arden Speaks

I had our video camera out the other day.  I intended on making a short video that would show what Arden’s finger sticks and injections look like.  But I’ll have to get back to that idea another day.  Because that afternoon Arden took her nap two full hours sooner then she normally does.  Because Arden’s Blood Glucose drops rapidly during her afternoon nap I tested her at exactly one hour and forty minutes after the injection. (She never naps that early - ahhh).

Her BG was 78 and the NovoLog was really starting to work at 100%.  I woke her up, and narrowly avoided a seizure (she got as low as 24).  

When all was well she began to talk about her last seizure... And I was able to turn the video camera back on without her noticing.  I have to say that it’s an altering experience to hear Arden explain what happens to her when she seizes. Links below.

The video is on our site here

On YouTube here

And in a larger format here to view or download (QuickTime).

Please let me know what you think. 

Well... that was horrible!

Arden wants to have a ‘Princess Party’ this July to celebrate her fourth birthday.  She tells people about it whenever she gets the chance.  Recently, we became aware that she was also telling people that her diabetes was going away on her birthday.

Sunday afternoon Kelly and I sat down with her to explain that wouldn’t happen.  She cried when we told her but not like a child cries, more like an adult that has just learned of a death.  It made me realize that Arden is going through even more then I had imagined. 

It was one of the worst moments of my life.  Which at this point is really saying something.

We don’t know where she got the idea that her diabetes was going to go away.  I find myself hoping that another child told her or that she misunderstood something that she heard.  Because if that was her birthday wish...  That may just be more then I could deal with. 

Please consider making a charitable donation the the JDRFtoday.

Have you seen Arden’s Auction there are three new items available to bid on.  Also if you haven’t watched Arden’s video on YouTube, please take a look.  

Good News, A Story and Art... oh my.

Arden had her quarterly Endocrinologist appointment today.  Her hemoglobin A1C was steady at 8.2!  She also has gained some weight, which made everyone very happy.  We discussed the leg cramps that arise when her BG is too high but mainly went over her care to ensure that we are doing everything we can as well as we can.

We have received another generous gift for Arden to auction!  This one is really great.  A HomePrint from Bucks County artist Celeste Accardi.  You really have to take a look if you are a proud home owner, need a house warming gift or have those parents that you just can’t think of a gift for anymore.  Celeste creates a beautiful piece of art from a photograph of your home.  Please take a peek!  Celeste is spectacularly talented, I think you all will be fighting over this one!  Follow the Arden’s Auction links for all of the details.

Lastly, a lot of people have asked us “how we knew” Arden had diabetes.  I’ve avoided answering as it is an unpleasant memory to call up.  Today for some reason I felt like I could do it.  So for those of you that are interested, I’ve tried to tell the story as best as I can.  You can follow the link at the top of the page or the one located here. 

Thank you for being a part of making Arden’s Day more hopeful!

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The following are archived comments from this post. You can post new comments below.

Scott

I feel awkward acting like a salesman but please take another look at this auction.  The beautiful watercolor you'll receive is really magnificent!  Maybe it's because I've seen them in-person but I'm a bit surprised that this isn't a hot item on Arden's Auction.  I thought I'd be beating you all of with a stick...

Tuesday, March 25, 2008 - 12:07 AM