Book Stuff

Life Is Short, Laundry Is Eternal 
#8 In Fatherhood (paperback)
#7 In Fatherhood (Kindle)
#1 In Diabetes (paperback)
#6 In Diabetes (Kindle)

Add my book to your GoodReads Shelf

Life Is Short, Laundry Is Eternal: Confessions of a Stay-at-Home Dad

Social Media

 

 

Life Is Short, Laundry Is Eternal is a Mom’s Choice Awards® Gold Recipient

Winner 2011 Advocating for Another

 

Winner 2011 Editor's Choice


Recent Blog Entries
504 A1C ADA ADG Adrenaline Advocacy Anniversary Apidra Arden Arden's Writing Ask Me Anything Awards Basal Baseball Basketball bBlogger Bbook BGnow Big Blue Test Blogger Blue Friday book Books Canada Carbs Caregiver cConfessions of a Stay-at-Home Dad CGM charity CHOP Coco Cole community Confessions of a Stay-at-Home Dad ConsultYourDoctor Contest Coxsackie DayOfDiabetes DayOne Dblog D-Blog Day D-Blog Week DexCom D-free post diabetes Diabetes Art Day Diabetes Awareness Month Diabetes Blog Week Diabetes Hands Diabetes Mine DiabetesDaily Disney DOC D-Politics D-Resource DSMA D-Supplies endo Explicit FaceBook family Father's Day Faustman Favorite Post FDA Flexifix Follow Up Free Stuff Freelance FreeStyle fundraising G uest Post gGlucose Meter GiveAway Glucagon Glucose Meter Guest Post Guilty Health Howard Stern HuffPostLive Hurricane Irene iBGStar IDF In the News Instagram Insulet Insulin Insulin Pump Insurance Interview iPhone Irene JDRF John Sarno Katie Couric Kelly ketoacidosis Ketone LaceUp4Diabetes Life is Short Lilly Love MDI med Media Medtronic MLB MLK Mom's Choice Award MultiClix NLDS Novo Nordisk NPR OBX OffTopic Oklahoma Tornado OmniPod Parenting Perspective Petition Pharma Phillies PodCast pPerspective Pre-Bolus Prescription Preventative PWD reader mail Recall research review Roche Sanofi School Sick Day Site News SleepOver Smaller OmniPod Social Media Soft Ball Softball Spanish Speaking Spring Infusion Set SpryPub sStrip Safely Stay-at-home Dad Steve Jobs Stress Strip Safely technology Teen TheDX TipsNTricks Transparency Travel TrialNet ttechnology TuDiabetes Twitter ty type I video Walk WEGO World Diabetes Day
Search

Entries in Insulin Pump (46)

Sunday
Feb052012

Switching from MDI to an insulin pump

This post is in response to the question that Melissa posed on 'Ask Me Anything'.


Hi Scott,

I was wondering how you felt when you got Arden's pump. Alison has been doing MDI since July 2010 and we just got her first pump yesterday.

I have to admit that I was really excited when the girls and I opened the box up. The little ones were excited to see the unit power up and hear the sounds it made and it was a really positive experience.

Once both girls were asleep in their beds, I took another quick look in the box. I was overcome with tears. I felt this enormous weight and sadness, almost like I did when we were coming to grips with Alison's diagnosis.

Just thought maybe others could share how they felt (excited, nervous, sad) about the changes in their child's lives. - Melissa


To answer your question simply... I was nervous beyond compare when we made the move to pumping. In my opinion switching brings up a lot of those old diagnosis feelings becasue it again challenges you to learn something foreign and learn it quick. That should be the definition of pressure, "figure this out or here's the list of bad things that'll happen to your child".

The long answer is this... In a few days we'll be celebrating Arden's third anniversary with her OmniPod insulin pump. I can remember getting more and more nervous as her pump start appointment approached. On the way home from the endo's office that day we stopped for lunch and I thought that I was going to cry right at the restaurant table. Switching from MDI to a pump instantly reduced me from a seasoned type I parent to a rookie. In that moment everything felt new and I was confusing myself with every move that I made. Basal, bolus, cannula... why did they have to rename stuff? What was wrong with long acting and short?

I just about fell apart... Then I looked over at Arden and she didn't care that everything was new. She was beaming, thrilled that the shots had ended... that's all she knew or cared about. I figured that if she could do it then so could I. So I took a deep breath and thought to myself, "bolus is the shot, basal is the long acting insulin, this is going to help her... lower A1c, no more shots... bolus is the shot - I can do this." A week later I felt like a pro again (I wasn't but at least I wasn't scared).

Melissa, I've been overwhelmed by a great many diabetes related moments. My best advice is that we have to go through these things so we can become the people that our children need. The first few years and the changes that come with them are our diabetes education. No one is going to be able to fully explain this disease to anyone else, we all have to live it to learn it, we have to suffer with it to master it.

One night as I was putting Arden to bed she asked me, "what am I going to do when I go to college", referring to overnight management. Poor kid, she's seven years old and she is concerned that she won't be able to be safe ten years from now. After I explained that by then she'd have a system just like mine, I went into the next room and cried. The trick is that I left my sadness in that room when I was finished. I choose to let those moments strengthen me. I considered them a hurdle crossed instead of another chink in my armor. I may be fooling myself but if I am... it's working.

Living this life demands that we get scared and even cry sometimes but always push on...

Congratulations on moving your little girl to insulin pumping, I hope and expect that it will be a wonderful addition to both of your lives! I know that my stress decreased significantly when the OmniPod came into our lives.

If anyone would like to share how changes in their child's care has affected them, please post your remarks after Melissa's at this link.

Great thanks to Melissa for sharing!

Thursday
Feb022012

DexCom and Tandem Diabetes Care Announce CGM Development and Commercialization Agreement

Breaking diabetes tech news!

DexCom and Tandem Diabetes to develop a "CGM-enabled insulin pump"

Read the blurb and then continue to the link for the rest... New diabetes tech innovations are always good news, I can't wait to hear more about this and other collaborations. 

 

SAN DIEGO--(BUSINESS WIRE)--DexCom, Inc. (NASDAQ:DXCM), a leader in continuous glucose monitoring systems, announced today that it has entered into a Development and Commercialization Agreement with Tandem Diabetes Care, Inc. to integrate a future generation of DexCom’s continuous glucose monitoring (CGM) technology with Tandem’s t:slim™ Insulin Delivery System, the first ever touch-screen insulin pump.

 

You can read the rest of the announcement at this link

Current Tandem Pump

 

Current DexCom Receiver

Friday
Dec092011

Your opinion is needed: Insulin Pumps and Glucose Monitors

I am in the throws of launching a charitable foundation whose focus will be assisting diabetic children that want but can't afford insulin pumps and continuous glucose monitors.

The necessary paperwork to form the charitable entity is getting very close to being submitted. In the meantime, I am diligently working on ways to make the charity as successful and far reaching as it possibly can be. I will be involved in a number of meetings and presentations over the coming weeks and months and I was hoping that you could help me to better understand how the costs associated with managing diabetes effects your financial life. I am very interested in hearing from the parents of children with type I but if you are an adult with diabetes I am still very interested in your answers - you never what the future will bring.

If you would be kind enough to anonymously answer a few questions, I will be able to use the data you submit as I search for the funding necessary to make this fledgling dream a robust reality. You won't be asked anything that would identify you and none of your personal information is collected by this site.

The answers that you provide will help me to make a better presentation when speaking with potential donors, supporters and sponsors. None of the answers are 'required' by the form and you can skip any you like by choosing "left blank".

Your support is greatly appreciated!

The data collection form is located here. http://www.ardensday.com/anonymous

Monday
Nov282011

OmniPod Rash?

If you've ever experienced a rash under your OmniPod, CGM or infusion set adhesive, read on.

Before I begin I need to say that I'm not a doctor and you should never confuse me sharing my experiences with health care advice. Never make adjustments to a care plan without first checking with your physician.

In the summer of 2010 Arden began to develop a rather severe rash under her OmniPod. I was confused because she had been wearing her OmniPod for a rather long time with no issues and it seemed random that she would suddenly have such a reaction. I turned to the internet, called Insulet and was presented with a number of "solutions". My problem with the answer that I was given was that it included buying more stuff and it complicated the pod application process. I really believe that the simple answer is often the best, so I held off on putting the conventional fix into practice and took another shot at diagnosing the issue myself.

Before I could put my thinking cap on I noticed that I was rubbing my finger tips against my thumb and that my finger tips were sore. I looked at them and saw that they were dry and begining to crack. I drifted away from Arden's issue momentarily to wonder about my own and then it hit me - I'm always touching alcohol swabs, that's probably why my fingers are so dry.

That realization led to an epiphany and suddenly I (thought) knew why Arden was developing rashes. At Arden's next pod change and every DexCom and OmniPod application since, I have cleaned Arden's sites with warm water and a clean towel - nothing else. Not only has she never had another rash but her pods don't stick to her like they've been cemented on when it's time for them to be changed (don't worry, they don't come off prematurely).

Turns out for Arden, chemically wiping away the oil that her skin makes naturally and then covering the area with an adhesive strip, wasn't a good idea.

I've shared our process with Arden's endo NP. She wasn't thrilled that I stopped disinfecting Arden's sites before poking a hole into her but she does acknowledge that we may have had to discontinue using Arden's pump without this adjustment. For us it's a calculated risk, you and your doctor can decide if it's the right thing for you to do. I wish you much luck!

Thursday
Nov172011

Untitled Giving Project Update#1

It's been 14 days since I wrote about my want to launch a charitable foundation to provide insulin pumps and continuous glucose monitors to children that need but can not afford them. 14 days

A very lot can apparently happen in 14 days...

The Diabetes Online Community has fully embraced my goal and I thank you! Monetary gifts, offers to help and professionals wanting to donate their services have all been pouring in. I've made new connections and had conversations that can only be characterized as uplifting. I've received gifts great enough to pay for the initial paperwork filing and am currently in discussions with an attorney about how to best move forward. I won't stop you from leaving a gift today but I will say that, for the moment, we've reached out initial goal! Please take a moment and reflect on what an amazing place the DOC is, I'm proud to be even a small part of it and I hope you are as well.

 

  • If all goes well I'll be able to announce the name of the future charity very soon. 
  • Wonderful offers to guest post on Six Until Me and The Girl with the Portable Pancreas have helped get the word out.
  • I'm diligently working at acquiring corporate sponsorship for the charity, having already made my first pitch yesterday. (If your company is interested please reach out)
  • I'm currently crafting a mission statement and can not wait to be able to tell you more.

 

Thank you for being the amazing group of people that you are! Wait until you see what we do when we band together...

I'll be back with more news as soon as I can.

Best,

Scott