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Entries in Insulin Pump (46)

Friday
Mar112011

Fra Mauro highlands

Arden experienced a pod error the other day and we had to change her OmniPod two days early.  Usually that is a bummer because you have to remove the old pod, prep the site and the new pod and deal with what they call “a pod change high”, which is a sorta unexplainable high BG trend that happens for a few hours after a pod switch.

 

Butt today none of that bothers me and no I didn’t spell ‘but’ incorrectly...

 

Today, out of thin air Arden announces that she is ready to put the pod on her buttocks. {This space reserved for you to feel my elation} It may not seem like a big deal butt... it is.  With this leap of faith Arden she now has eight pod sites!!!!

 

Many people warned me that Arden was to thin for an OmniPod but I didn’t listen (finally my not listening pays off) and now just 13 months later we are up to eight sites, we only started with two.  I’d dance if I was any good at dancing.  You know what? You can’t see me, I’m gonna dance....

 

I’m back and yes I really did dance and no it wasn’t pretty but it felt great!  

 

One small step for Arden...

Thursday
Jan272011

Spontaneous reboot

Arden’s PDM has been spontaneously rebooting for the last few days.  Sometimes it happens when I press the home button and sometimes it happens when no one is touching it.  The long and the short of it is... it’s broke.

 

I just called Insulet (makers of the OmniPod), I held for a few minutes and then explained my situation much in the way I did in the previous paragraph. (I think that it’s important to note that the CSR doesn’t know that this is my website and that I’m not compensated by Insulet or anyone else for sharing my thoughts about the OmniPod or any other D related stuff that you see on this site).  She put me on hold for 30 seconds and when she got back she told me that a new PDM would be overnighted to me immediately.

 

I want to note that I’ve never had a tense exchange with an Omni rep, never.  I have had moments when I was upset that I guess could have escalated when I didn’t like what I was hearing but that’s just never happened.  I’ve heard from time to time on the interwebs about folks having issues with Omni reps but I’ve never had anything but good experiences.

 

* I’m having issues with comments on the site that I’m working to fix.  Some people may not experience them.

Thursday
Oct212010

Proud to pod

Pick up today’s Trentonian to read all about Arden.  Great thanks to Sulaiman, the writer of the piece for all of the time and attention that he gave to our story.

 

The article is also online at this link.  If you like it, please take a moment to hit the FaceBook like button, ReTweet on Twitter or comment on the article at the Trentonian site, below at Arden’s Day - or do them all!

 

I can’t say enough great things about the Arden’s OmniPod, the freedom that it’s tubeless design gives to her or my experience with their customer service.  I don’t make statements like this on the site very often but, “If you or your child is in need of an insulin pump, you just must give the OmniPod a long look”.  You’ll be happy you did!

 

Lots of people are sharing the link on FaceBook today, thank you to all of you for being such wonderful supporters! Remember, it’s all about transparency and raising awareness.  Your support and help spreading the word makes Arden’s message that much stronger.  Have a great day!  One day when a cure is found, you will all have a place in saying, “I helped to cure type I diabetes”, I just know it...

 

If you’d like to make a tax deductible donation to Arden’s 2010 JDRF Walk, you can use this link 

http://walk.jdrf.org/index.cfm?fuseaction=extranet.personalpage&confirmid=87699113

Friday
Mar192010

Well meaning but wrong

Our children interact with people while they are at school and we as parents can’t control what they hear.  Most days I think of those interactions as moments that enrich my kid’s lives.  They get to hear points of view and thoughts from other people, other cultures and those interactions help to make them into who they are and will be. 

 

This week however, I’m not so thrilled.

 

Arden had photos taken at school yesterday and someone (an adult) told her not to worry if her OmniPod was visible because, in Arden’s words, “it can be photoshopped out so the picture will be pretty.”.  We are not pleased to hear that any overtones were made that indicate that Arden’s pod is in any way, something to be ashamed of.  Whether purposeful or inadvertent comments like that can and will lead to Arden having an unhealthy view of her insulin pump and of herself.

 

We teach Arden that her pod is a normal part of her life, we don’t care if people see it, stare at it or ask about it.  It is what it is and we will not hide, not for our comfort or for anyone else's.  


Arden is “pretty” and would be even if that pod was sticking to her forehead.  We addressed the comment with Arden and with the appropriate folks at the school and I’m confident that my message was heard.  We hold no ill will to the adult and I personally see this incident as just another teachable moment in our life with type I.  It is also a reminder of why good and clear communication between you and your child’s school is so important, this could have been a very uncomfortable moment but it wasn’t.  

 

**

The following are archived comments from this post. You can post new comments below.

Scott
I just spoke with the photography company and they assured me that they won't retouch Arden's picture.
Friday, March 19, 2010 - 04:50 PM
Aunt Megs & Uncle Mike
I would like to correct your blog...Arden is not "pretty", but BEAUTIFUL in and out and we are so proud of her!

Love you Ards!
Monday, March 29, 2010 - 08:52 PM
Amy
did you ever recieve these pictures. I would like to see them.
Sunday, July 18, 2010 - 08:52 PM

 

 

 

 

Monday
Feb152010

Saw a movie, lost a PDM

This blog entry starts with a movie, moves on to digging through garbage and finishes with me feeling like quite a failure... but it has a happy ending and we don’t get too many of those in Diabetesland so they are extra special when they happen.

 

Valentine’s Day was going to end with us seeing ‘The Lightening Thief’ but instead it ended with me rummaging through the garbage at our local theater.  I don’t know how but I lost Arden’s bag that holds her OmniPod PDM, lancet and test strips, I just didn’t pick it up when we left the theater.  I realized it almost as soon as we got home, I called immediately but it was already gone. I drove back to the theater and dug through maybe 30 trash cans but I just couldn’t find it.  

 

Arden and I went back again to check the theater after the last show ended but still no sign.  She was so sweet, she walked up and down every isle in the theater and stood next to me peering into the garbage, finally after her nose couldn’t take it anymore she said, “it’s okay Dad, it’s not here, we can just buy another one”.  What Arden didn’t know is that a new PDM costs $500.  

 

I am, as most of you are aware, a stay-at-home dad.  I haven’t earned $500 combined in the last decade which makes loosing something that valuable much more painful.  First, loosing Arden’s PDM, the thing that literally keeps her alive, made my heart hurt.  It was like it was my job to remind her to breath and I just forgot to.  Second, the cost is a bit oppressive and as I said, that failure is compounded by the guilt I feel of not having an income.  So sufficed to say I wasn’t having a great night.  Though one bright spot (for my midsection) is that I don’t think I’ll be getting a popcorn the next time we see a movie. While I’m commentating on theater food, note to theater owners: no one drinks their entire soda - smaller cups wouldn’t hurt.  I woke up this morning every bit as dejected as I went to bed.

 

But I feel better now, want to know why?

 

I made the call this morning to Insulet, the company that manufactures Arden’s OmniPod insulin pump to order a new PDM.  I spoke with a wonderful woman named ‘Audrey’ (Hi Audrey, I hope I spelled your name correctly) and I told her just what I told you.  I said as plainly and honestly as I could, “I lost my daughter’s PDM and it’s going to be difficult to raise $500 to replace it”.  We spoke for a few minutes and I shared with Audrey how horrible I felt for losing the PDM and not being able to generate the funds to replace it.  She put me on hold and when she came back she said the nicest thing that maybe anyone has ever said to me, “Arden’s new PDM will arrive on Wednesday”.

 

Audrey worked it out with her manager as a one time courtesy to replace Arden’s PDM at no cost.  Not many good things happen in my day, most days are full of type I diabetes stress and pressure. The stress is so palatable sometimes that it permeates to the people around us.  Some days the poor nurses at Arden’s school sound exhausted after caring for her, our family and friends can’t comfortably have Arden over to play and even as I write this my mind is busy worrying if Arden’s BG is stable as she sleeps in today.  Thankfully, today has a bright spot to chase away those shadows.

 

I want to tell all of you and anyone that will listen that the OmniPod made our lives indescribably better on February 11, 2009 and it continues to, nearly one year to the day later.  Not many companies have a heart but I can say without reservation that, in a life that most days feels full of shadows Insulet and the OmniPod are one of our bright lights.

 

Insulet is online at - http://www.myomnipod.com/ and if you are a type I diabetic or love someone who is, I can’t recommend enough that you check them out.

 

Thank you to Audrey and Insulet!  You saved us today and I won’t forget what you did or how it made me feel.

 

**

The following are archived comments from this post. You can post new comments below.

That really is great news. I am so on the fence as to a medtronic or an omnipod. My CDE was just saying they dont recommend many kids use the omnipod because they are so active and they see them get pulled out.

Your experience seems quite different. And the support for Omnipod sounds really good. You really sound like an awesome dad, doing all you can for your sweet little girl.

I probably wont remember to come back and see if you have any thing to add about your omnipod and your posts, so if you get a chance email at clcooper@gmail.com.

thanks!