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Entries in Transparency (88)

Monday
Jul122010

Arden is on TV!

Today Arden was interviewed about her type I and the OmniPod.  She spoke about how much she loves not being connected to a machine by a tube.  When they asked her what she liked least about about having diabetes she said, “I don’t like having high blood sugar because then I can’t eat”.

 

We think that it will be on TV in November for diabetes awareness month.  

 

Now I’m typing absolutely nothing so that they can tape me doing it. Sorry for all of the filler words. Now I’ll type whatever Arden says. “I don’t know, laughed, more laughing, I don’t know.  Now I am typing nothing again the camera guys says that we are almost finished with this part.

 

In a bit they will film her doing some yoga and hitting her softball.  I can’t wait for you all to see it.

 

UPDATE: The spot ran for the first time the other day.  Check it out here in our OmniPod blog.

 

Monday
Apr052010

Coles TrialNet Blog

 

 

 

 

Hello, I’m Cole, Arden’s brother and I wanted to share the experience I had today at Arden’s endo appointment.

 

I'm nervous and just a little bit excited that I'm going to get my blood drawn for CHOP's TrialNet study today. I thought this was the least I could do for my sister. I'm not thrilled about it but my sister Arden has had type I diabetes for almost four years and my blood can help find new treatments. All of my family and millions of other people are working to help doctors to cure diabetes. My dad has been working on this website ever since Arden was diagnosed with type I. He created it to help people who want to learn more about type I diabetes, so my dad's website helps people.

 

 

I'm in the waiting room now and my dad is filling out paperwork for me and Arden.... Now we are in the vitals room. Arden is the one getting weighed and measured but I have to be here, I'm getting even more nervous....

 

Now we are in the exam room waiting for the nurse to come get me... She's ready for me... Be right back. 

 

I'm back, she just took the blood and it wasn't as bad as I thought it was going to be. It did sting, but not the worst feeling ever. The worst thing about it is that I can hardly bend my arm because of the band-aid and that's not so bad. I thought it would be as bad as when I slammed my finger with a weight last month.

 

I think that I did a really good deed today and I hope that other siblings of diabetics consider helping too.

 

To learn more about TrialNet go to

http://www.diabetestrialnet.org

 

Thank you for reading my first blog post,

 

Cole

age 10

 

**

The following are archived comments from this post. You can post new comments below.

Aunt Megs
Great job Cole!
Monday, April 5, 2010 - 11:31 PM
Grandmom
Cole, iam so proud of you,you did a wonderful thing,i know you must be feeling great,to be able to help ardei love you all,again i am so proud of you.

Saturday, April 10, 2010 - 10:57 AM 

 

Friday
Mar122010

I’m here for... my insulin pump

The White House is sponsoring a campaign called, The Final March for Reform.  The campaign is highlighted by people printing out a sign the reads, “I’m here for” and then they fill in the rest...  Arden submitted two photos with Cole, the one that you see here with her proudly displaying her OmniPod... the other is on Daddy’s blog. {link}

 

Arden’s Day steers clear of most everything political.  However, on the issue of health reform we are vocal.  If reform is passed, Arden and every child like her will never again be at risk to lose their healthcare because of a preexisting condition.  No longer will we be scared to switch jobs or fear the day that she is too old to be on our insurance.  Health reform won’t just secure Arden’s ability to stay healthy, it also will relieve a major source of our stress and worry.  Add your voice...

 

http://my.barackobama.com/page/content/finalmarch-visualization

 

Friday
Feb122010

Diabetic U.S. athlete has a point to prove

BY MIKE BEAMISH, VANCOUVER SUN FEBRUARY 11, 2010

The closet of Olympic cross-country skiing is littered with incriminating paraphernalia: vials, syringes and equipment used by cheats to gain a chemical edge.

 

But nobody in the sport of skinny skis is more open about the use of the needle than U.S. Olympian Kris Freeman, a New Hampshire native who requires them simply to survive.

Indeed, Freeman openly injected himself in plain view to prove two points: that an athlete with Type 1 diabetes can excel at the highest level of sport. Secondly, Freeman's very public injections were a repudiation of those athletes who shoot up illegally and clandestinely.

 

Follow Kris on Twitter @ http://twitter.com/TeamFreebirdXC

 

"Up until two years ago, I was taking 12 shots a day -and I was doing it in the open," Freeman said Wednesday. "In the cafeteria, when all of the teams are sitting together, I'd take out my syringe with insulin and stick myself in the stomach with it. The guys who have cheated in the past did it behind closed doors. They were secretive about it. I'm in the open about it. The IOC knows I use insulin, WADA [World Anti-Doping Agency] knows that I use insulin, FIS [the governing body for skiing] knows that I used insulin. Hopefully, I'll win a medal and everybody in the world will know I use insulin."

Diagnosed 10 years ago with Type 1 diabetes, a life-threatening condition that affects the breakdown of food into energy, Freeman was told to forget about an Olympic career. Yet here he is, a decade later -a 10-time U.S. champion and three-time Olympian talking openly about ending an American drought in cross-country skiing that spans 34 years.

 

Vermont's Bill Koch was the first and last American to win an Olympic medal in cross-country when he took a surprise silver in the men's 30 km at the 1976 Winter Games -a Halley's comet-like performance in a sport thoroughly dominated by Scandinavians and Russians. Since the Winter Games began in 1924, Norwegians, Finns, Swedes and Russians have won 189 of 216 total medals in cross-country skiing. Of those remaining 27 medals, three have been won by Canada, all since 2002.

 

"I've battled two stereotypes since I was a kid," says Freeman, 29. "The first was that Americans could never succeed in cross-country skiing. People would say, 'You may have won junior nationals, but you'll get your butt kicked in Norway.' Then I got diagnosed with diabetes, and I was told I'd never race again. I like to prove people wrong, and I like a challenge. This is the best team I've ever been a part of. "

 

Freeman points to Kikkan Randall, a 27-year-old Alaskan with a swath of magenta-tinted hair who is unique both in appearance and accomplishment. She is the first American woman to win a medal at the world championships.

Then there's Vermont's Andy Newell, one of the world's fastest sprinters, and Freeman himself, who has two fourth-place finishes at the worlds.

 

"It's not a guarantee that we're going to break through for a medal, but it's so possible," Freeman says. "It's not like we're going to need a freak day to do this. We can do it on a plain, even playing field. It just has to be on the right day."

To get his metabolism right, Freeman relies on the OmniPod, a disposable pump that regulates the flow of insulin to keep him from crippling episodes of unbalanced blood sugar.

 

"For a 15K, I need three times the insulin to go into my body that I do for a 30K," he says. "For a 15K, I'm almost anaerobic [using oxygen more quickly than the body can replenish working muscles] for the whole time. My blood sugar rises. When I'm aerobic [efficiently transporting oxygen], my blood sugar falls. It's a really delicate balance, depending on the exertion."

 

He must also be vigilant about getting too amped before a race. "My blood sugar can rise just by sitting there," he says. "So, certainly, the Olympics are going to affect me more. I try to listen to calming music. But it's hard to find calming music I like, because I'm very into heavy metal -Guns N' Roses." Of course, a band with an appetite for booze and hard drugs is in no way an extension of what Freeman represents -an indomitable Olympian breaking down barriers for diabetics. Because skiing truly is in his blood.

 

mbeamish@vancouversun.com

© Copyright (c) The Vancouver Sun

Photograph by: Richard Heathcote, Getty Images, Vancouver Sun

Borrowed from -http://www.vancouversun.com/health/Diabetic+athlete+point+prove/2549954/story.html

Saturday
Oct042008

Alberta Diabetes Foundation

 

We were contacted by the Alberta Diabetes Foundation a few months ago.  Arden will be helping them with some fundraising later this year by lending some of her videos and photographs to their efforts.  I also made them this short video.

 

We look forward to helping them any way we can, they have a fantastic organization and if you live in Canada please consider lending them your support!  Alberta Diabetes Foundation