I (me Scott) had a dream

I’ve begun working on a new video for the site.  This one will also be featured on the JDRF’s new but currently unreleased website.   

The videos goal is to teach other people effected by type I how to be better more effective advocates.  I’m tempted to give more details now but I think I’ll hold back a bit longer.  

Okay onto my dream.  I had a dream last night that I thought Arden’s BG was low.  She was scared and shaking but I couldn’t get the test strip into the meter and then once I did I couldn’t get it to work.  In the middle of the dream Kelly woke me up because it was time for me to check Arden’s BG, which was weird.  

Talk to you soon!

BG Match Game

Arden’s Blood Glucose (BG) level is the main focus of our day-to-day existence.  Not too high, not too low, always trying for just right.  A person with a properly functioning pancreas has a BG of around 100-110.  Arden’s target range is 100-150 right now.

I checked Arden’s blood glucose 11 times yesterday and each time I checked I took her picture.  See if you can match her picture with her blood glucose level.  

After everyone is finished, I’ll makes some points based on your experiences matching her face to her level.  Please come back to this page and leave your “score” with the Add aComment button when you are finished.

Click here to play

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The following are archived comments from this post. You can post new comments below.

Scott

Okay so I waited less then one day and then I tried to play the game... I got 3 correct and that is only because I remembered the BG from the picture.  

The moral of this story???

Saturday, June 21, 2008 - 09:13 AM

Mike

I only got 3 right as well, I hoped my diabetes would give me a edge. Mebbe if my wife plays she'll do better. I think the moral is you can't tell just by looking what a blood sugar is. The only real sign I know of is a change in behavior, more surly when high & silly when low, but that seems to bethe norm for small kids. So unless she's screaming about the llamas, testing is the only way to gage

Sunday, June 22, 2008 - 12:23 PM

Reader Mail

Arden gets messages from all around the world about her blog.  Here is some recent correspondence... 

Posted on Arden’s Video Blog. From Emily age 12:

This is very touching, and i really didn't know how much all these shots would add up to, how many does Arden usually have??

I am a type 1 diabetic, and my heart really goes out to someone as young as Arden, coping with this terrible disease, she really is the bravest little girl i have heard off. Although i am much older then Arden (12!) i still know how it is to live with Diabetes, but to try and re-assure you, it does get easier for the parent once the child grows up, so my mom says , most days i now give myself insulin and tset my own BG, we need to find a cure, to give all the sufferers their childhoods back, it isn't fair.

STAY STRONG ARDEN, a cure is on its way. xxx 

This next one was posted on YouTube:

Thank you for this. My daughter has type 1 as well (age 4), and although we try to keep positive for her sake, it's also important to remember that this is NO way to live. I'll never think of "King of Pain" in the same way again ... 

This one arrived via email:

Hi, my name is Nicole and I was just viewing your website.  It is absolutely amazing and I cried my eyes reading every portion of it.   I have a daughter who is 7 and was diagnosed with diabetes March 2007.  It is definitely a daily struggle to maintain the blood sugars but as any other, we are learning everyday and coping the best we can.  Fortunately my daughter is a trooper and doesn’t let it get her down, I’m the one who occasionally gets down.

But I just wanted to thank you for the amazing website.  Your daughter is beautiful.  I wish you all the best.

Another email:

Hello!  My name is Jeanette and my 6 year old daughter was just diagnosed with Type 1 diabetes on March 10 of this year.  I did sign your petition, of course, and I just wanted to personally thank you for getting so involved.  It is a very frustrating time for us with her numbers going up and down so often.  Please keep me informed with your progress.  Thank you,

My thank you to you...

These people found Arden’s Day because of you and the diligent and caring way you spread the word.  Thank you!

As you can see Arden’s Blog is many things to many people.  It’s hope for the hopeless, comfort for those that feel alone and a teaching tool to those that previously didn’t know.  

Maybe one day a young researcher will stand to receive the noble prize for medicine and begin their speech, “I decided to become a doctor one day when I saw a little girl on the internet that had Type I Diabetes...”  

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The following are archived comments from this post. You can post new comments below.

Emily

Oh my Gosh, you featured my comment on your website, thankyou so much. You have no idea how much this means to me! thankyou so much.

Your blogs and videos re so inspirational, and i have told everyone at my school about ardensday.com, my mum has also seen it to, and she nearly cried at all the work you have put into this website.
Do you make it all yourself or do you have a 'computer guy'??
Please tell Arden to stay strong,  and something i noticed a while back, is Cole must be an exceptional brother, to see his sister go through this, and the amount of time in his day taken by shots,BG test, measuring carbs. etc.... He must be a exceptional boy, well done x and also to you and Kelly, who make everything possible, the amount of work put into this site, and everything you do for Arden, you really are great parents. xx

And we WILL find a cure for her, me, and everyone of those children, adults. and the elderly suffering with something they shouldnt have to.

Thankyou again, Emily age 12

Saturday, June 14, 2008 - 05:24 PM

Scott

Hey Emily,

You are welcome!  Thank you for your very kind and inspirational words!  

And thank you again for telling so many people about Arden's site!  
The chance to find a cure grows with every new person that understands 
what it's like to live with Type I.  

I take care of the site myself on an iMac with Apple's 'iWeb' application.  
It's actually very easy to do!  So no "computer guy", unless you count me.  

Cole is a great big brother and the demands Type I puts on our family have
definitely effected him.  He is very patience and understanding of the things we have to 
do with Arden throughout each day.

Have a great Emily!  And please tell your mother that we send our best.

Sunday, June 15, 2008 - 07:18 AM

I have to stop answering the phone

I’ve been contacted by the JDRF twice this week.  The first time I  was asked to develop and produce a short video for their new website that is launching later this summer.  The goal of the video is to teach others how I use the internet to raise funds and awareness for the JDRF.  

The second call came from our local chapter.  It seems that the walk we attend is totally coordinated and run by volunteers.  This year they are trying to expand the walk site’s corporate sponsorship.  I think Betsy must have noticed how diligently I hock all of you nice people and thought I may like to try my hand at bugging some Bucks County business owners too.  

I’ll start here... If you own a business or know someone who does and are interested in sponsoring the 2008 JDRF Walk to Cure Diabetes please drop me a line and I’ll send you the details of how you can help.

Cole Gives Blood to Find a Cure

Actually we all did.  Though Cole was the least willing...  It should be first noted that Cole is not a fan of needles.  In fact there is a nurse at his pediatrician’s office that I believe may have taken out a restraining order against him.  But that is another story. 

So as it turns out there is information in Cole, Kelly’s and my blood that may hold the answer to curing Type I Diabetes.  The fine people at TrialNet are dedicated to the study, prevention and early treatment of Type I Diabetes.

Please join us in congratulating Cole on his selfless act and for not threatening to take a poke at the phlebotomist.

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The following are archived comments from this post. You can post new comments below.

tanya lehmann

Great work, Cole.  You're very brave and selfless.  You also look like a major league pitcher in that photo!  i'll have to share it with Tyler when he gets home.

Friday, June 13, 2008 - 01:11 PM