(Almost) Up in the Air

How many OmniPods would you take on a ten day vacation?

If you were going to leave your home early one morning and drive over an hour to an airport to catch a four hour flight, one that would take you to a remote island location for ten days... how may OmniPods would you bring?

I brought eleven

I also brought two hundred test strips, an extra MultiClix, an entire package of lancet cartridges, one backup OmniPod PDM, a ketone meter with a 50 strips, two glucogon kits, four vials of Apidra, five DexCom sensors, a brick of juice boxes, candy, fast acting glucose tablets, five packages of needles, FlexiFix, AAA batteries, a DexCom charger and three copies of the travel letter that our endo wrote.

Other than the fact that everyone was a mix of exhausted (long year) and excited (we never go on vacations like this), our flight to the Caribbean was uneventful. The TSA experience in New York was fast, pleasant and so accommodating that the multiple juice boxes we brought through screening were treated like medication. Actually, for the first nine and a half days of this vacation all of my extra supply preparation was unnecessary. We never had one issue with our D technology, sensors stayed on, insulin resisted the heat and diabetes was a perfectly behaved travel partner.

It wasn't until we were literally walking out of the door to return home from our island getaway that things began to go the other way. I knew that the odds were stacked against us, I mean, how often do you get to go ten days without a significant diabetes issue that requires your inner MacGyver?

During travel, I keep enough supplies in my carry on bag to complete one site change. The bag also contains enough insulin and needles to manage for a full day without needing the backup supplies that are in my larger luggage. I lug that stuff with me when we fly with the hopes that I'll never need it.

Was it an omen, probably not... I don't believe in omens, but I did drop a vial of insulin as I was packaging the Apidra back into it's ice pack for the trip home. Fun Fact: I've never broken a vial of insulin until the one in my hand hit the stone floor of our rental home. No matter, I had three more. #prepared

We drove our rental jeep to the ferry, made the short trip from island to island and then jumped into a taxi destine for the airport. It was during that taxi ride that Arden's BG got a little squirrelly, I bolused. TSA was again a dream and before we knew it our bags were off to the belly of the plane. All that was left to do was to grab a pre-flight meal and wait to board. We ate, found our way to the correct gate and planted ourselves in some soft chairs. 

Ferry Departure

BEEP BEEP goes the DexCom

"I must have miscalculated the airport food", that's what I thought when Arden's CGM indicated that her BG was rising thirty minutes after our meal. I reassessed and added more insulin but the beeping continued, soon after the arrows changed from diagonal up to one arrow straight up. Before long, the arrow found a friend... two arrows up. Hmmm, WTF!? Turns out that Arden must have unknowingly banged her leg into something during our trip from paradise to the airport, I noticed a tear on the OmniPod adhesive and the canula looked withdrawn. Interestingly, on the same day that I dropped my first vial of insulin our first canula became dislodged. What a diabetes day we were having, I wonder what could make it even odder? How about my first airport pod change at gate 4. Honestly, it didn't bother me to change the pod there and Arden didn't care... she isn't shy about diabetes in public. So I balanced everything on my lap and set what didn't fit on my leg behind Kelly on the chair next to me. I filled the pod, primed, inserted and removed the old device in a few moments. We tested, increased Arden's basal rate and then busted out a good ole' fashioned needle to combat her wildly high BG of 425. 

I'll admit that I was a bit panicky for a moment, the notion of chasing this high number in the air dind't sit well but then I remembered that we had a full complement of juice and other items. I did experience a wave of dread as I used the only spare pod that I had in my carry on bag. I began to run through scenarios in my mind, how I could talk TSA into retrieving my luggage from the plane so I could get more? But then I calmed down, we boarded the island way (see pic at top) and a number of hours later we landed at JFK airport where Arden's BG was 113. Seems Ben Franklin was correct, An ounce of prevention is worth a pound of cure. Smart guy. I may not be Franklin but I know this for sure... Bring extra supplies when you travel, you never know what may happen.

Luckily, we can only afford to go on a trip like this once a decade, so I have time to rest and recover!

Finally, here are some obligatory vacation photos.

Your Favorites: June 2013

June was heavy with softball related posts, A1c talk and more book stuff than I imagined would still be going on. The book stuff is still happening because of the overwhelming support that you all showed when my initial Yahoo based interview with Katie Couric was posted a few weeks ago. That post was so popular and well shared on Yahoo that they just ran it again on their front page yesterday, this time with a 'Yahoo Favorite' tag attached! So amazingly touching and cool... That video led to me being invited on to Katie's television show, which led to me being asked to write a blog for her website, which led to... oh wait, I'm not allowed to talk about that just yet.

On to the a recap of your favorite blog posts for June 2013. 

On Arden's Day

Holy @#%&*$% A1C - Also the most commented on post of June

DexCom G4 Platinum: Second Look - from December 2012

Pictures from my Katie Couric Interview

Mail Order Medication Exceptions: Did you know?

Number Thirty Seven

Meanwhile on Facebook

Pictures from my Katie Couric Interview was far and away the most seen and commented on post

Holy @#%&*$% A1C

Forget me, come see Arden tonight

Then there were literally a dozen posts that all had similar numbers

On Instagram you seemed to like seeing me in Katie Courics make up chair the best...

I'll see you in July!

Best,

Scott

Voldemort

I remember one summer when it felt like I heard the words, "Harry Potter" everyday. There were commercials online and on television, beach towels by the pool with the young wizard's face and it seemed like everyone wanted to see the movie about the boy with the scar on his forehead. I felt like I couldn't get away from the words, "Harry Potter"... but then one day it was all gone. No one uttered the words, the towels were packed away and the world moved on to the next thing. Today, maybe I see one of the films on cable while trolling the channel guide or because the films are so engrained into out lexicon, someone makes a joke with a HP theme, but for the most part I live my life without hearing the words or focusing on a visual reminder. 

Last night, still a little loopy from our vacation, Arden and I fell to sleep on the sofa together. Kelly asked me to bring her upstairs as she went to bed, I agreed, and then promptly went back to sleep. I slept last night next to Arden and held her DexCom receiver like it was my teddy bear. When I opened my eyes this morning that receiver and Arden's OmniPod PDM were the first things that I saw. Then, as it does each time that I awake, my mind sent me a message. I receive this message each time upon waking without fail. It comes to me when I open my eyes in the middle of the night, at my alarm in the morning, and after I nod off for ten minutes on a flight to a family getaway.

I wouldn't call the message something I hear in words, it's more of a feeling that I get, like someone whispers into my brain, "Arden has diabetes, is she okay... check on her".

After I woke up this morning I wondered how many times do I hear, say or think the word, "diabetes"? How much of my conscious and unconscious consideration is used everyday, managing, calculating and worrying.

I tried to imagine what it would be like to live an entire day without that word popping into my head. Would it be freeing, would I suddenly have all of this free time that I wouldn't know what to do with? Do you think that I'd find a new hobby or take more time to write. Would I exercise, get a bike, could I finally plant the vegetable garden that I know my wife desperately wants but I just can't figure out how to make time for?  I'd like to find out...

You know what though? Forget about me, I'd love to see Arden live a day without the word in her head. I'd like to know what it feels like to write one last blog post wishing you all well before I closed my diabetes blog because some company developed an artificial pancreas that was foolproof or a genius in a lab found a way to reverse all of this. More realistically, I'd take a day pass, but they don't really exist do they? Remember in the first HP movie when the wand salesman, Ollivander, told Harry that no one speaks his name and then everyone went on to say Voldemort about a thousand times? I bet if there was one more film about life in the Wizarding World after Harry defeated him, I bet people would still say, "remember when we were fighting with Voldemort, that shit was crazy!". 

Perhaps everyone gets a Voldemort in their lives. Maybe that's each of our chances to add to the collective human understanding. I think that I prefer to think about diabetes like that, not as a burden but a mantle. Still, I would like a day off once and a while. But since that's not going to happen...

Voldemort, Voldemort, Voldemort!

Video from my Katie appearance

Since we were away on a family vacation when my 'Katie' appearance aired, its possible that I was the last of us to watch it. I want to thank you all for the FaceBook messages and tweets that you sent during the show, they really helped me to feel like I wasn't missing it - you guys are the best!

Okay, well... my hair was a bit fluffier than I would have hoped and my (IMO) best and funniest answers were edited out (Likely because I strayed off topic) but here is my first appearance on nationwide television. I had the audience laughing a number of times with my pithy and sarcastic antidotes about married sex but since they didn't make the cut, I'm assuming that they weren't in line with the tone of the piece. I mean, I don't think that I was too dirty... I'll have to find another way to share them with you someday.

OmniPod, DexCom... you impress me

 

Tonight is the sixth night of our island vacation and I wanted to take a second to report in. So far during our trip Arden has been on an airplane, outside in the rain, lived in 90º heat and spent countless, often consecutive hours in the ocean. 

I am here to report that Arden's diabetes tech has not skipped a beat... I can't tell you just how invaluable these tools are in difficult situations like these. Between odd sleep times, varied and strangely timed meals and all of the activity, there is enough going on to mess with even the most Zen diabetes guru. I am not ashamed to tell you that I'd be just a little lost without our gear. 

I'll leave you with a picture of Arden in a mango tree.

I hope everyone is having a great week!