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Life Is Short, Laundry Is Eternal: Confessions of a Stay-at-Home Dad

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Wednesday
Jun122013

Video: My Interview with Katie Couric

This was, without a doubt, one of the highlights of my year.

I had the chance to sit down last week with Katie Couric at the ABC News studio in Manhattan. We talked about life as a stay-at-home dad, my new book, 'Life Is Short, Laundry Is Eternal' and how I feel about family. The interview is live now on Yahoo News. I genuinely would appreciate if you could check out the video and share the link while you're there. Thank you so much!

There is no way for me to convey how fantastically down to earth and amazing Katie was. Our private conversations, both before and after the interview, were truly something that I will never forget.

 

 

Please know how grateful I am for the consistently jaw dropping support that I feel coming from all of you as this crazy year continues forward. From the personal messages, to the amazing book reviews that you leave online, a person could not possibly be more touched and humbled than I am today. - Best, Scott

Monday
Jun102013

Holy @#%&*$% A1C

From the American Diabetes Association's explantation of Estimated Average Glucose (eAG) - check it out!

August is rapidly approaching which can only mean two things around here. The seven year anniversary of Arden's diagnosis, and the sixth anniversary of this blog are both coming soon.

Seven years in dog years is what, 49? Well in A1C years, it's 28. Arden has had twenty-eight A1c tests since she was diagnosed and most of them didn't go too well. As I've shared in the past, Arden's A1c began it's journey above nine and drifted lower over the years as I learned how to better manage diabetes. It wasn't until recently that we've made real strides in decreasing that elusive number.

I spoke in the past about the things that I attribute to helping Arden's A1c to fall. Things like finding the correct insulin for Arden, and technology like her DexCom G4 and OmniPod insulin pump. I recently wrote about Arden's decision to stop eating Fruit Loops and I think that may have put us over the top in this battle against "the number".

One year ago Arden's A1c was 8.1. Nine months ago we made real progress, 7.5 and back in January it was 7.4. I loved that 7.4 because it showed that the reduction wasn't a fluke, we were on to something! Today when we went to her Endo appointment I was certain that we would see another incremental reduction, and I was secretly hoping for 7.1. As I watched the timer count down on the testing equipment, my heart sped up just a bit. The last 10 seconds ticked away slowly, as I hoped to see that 7.1.

I'm not sure how I kept the words in my head when I saw the number, but somehow I didn't say, "Holy F*ck" outloud when the machine displayed Arden's latest A1C.

 

It was 6.5.

Six point five.

Six and a half.


Arden's A1c had dropped .09 in five months. I must of read that wrong I thought, so I stood up and looked closer and there it was just as clear as day, 6.5. I turned to Arden and said, "We did it Arden!". Then, without missing a beat, Arden warned the nurse that I was going to cry - but I never did. I wanted to cry, I wanted to scream into the air but I just sat back down, smiled, and told the nurse how Arden decided all on her own after our last visit to stop eating cereal for breakfast. "This was all her", I told the phlebotomist, "Arden asked after her last A1C what she could do to help it to go lower and I told her... she did the rest".

 

Back in February when Arden's A1C was 7.5 I listed a few simple reason that I thought helped the most to decrease her average daily blood glucose. I'm going to post them again here and then add two new ones.

 

Support - Love and support from family, friends and teachers is huge.

Insulin Pump - Being able to give insulin quickly and unobtrusively for meals, snacks and high BGs.

CGM - Arden's DexCom is a window to the past, present and future of her BGs and I couldn't make the pinpoint adjustments that helped us get to this new level without it. It's sad to me each day that the FDA doesn't approve it's use for young people.

Over night monitoring - Arden is sleeping almost half of each day, if you can control the night then a few bumps during the day don't hit the A1c average so hard.

Apidra - Arden's BGs are move stable on Apidra then they ever were with the other insulin she was using in the past. Make sure you are using the insulin that works best for you... not just the one some sales person gave your doc.

D.O.C. - You all give me strength to do these things when I otherwise feel like I can't. It's knowing that one of you is awake, sad, crying, happy or running around out of your mind like me that makes me realize that I'm doing okay.

new

Aggressively dealing with BG spikes - You know the ones, after a site change or miscalculated meal. In the past I preferred smaller boluses in the attempt to avoid a low but now I lean on the CGM and smack a high number in the face, preferring to catch it with carbs if I've administered too much insulin. The other way always left me bolusing and rebolusing for hours on end. The only thing I was accomplishing was taking five hours to guide Arden's BG back into place. Now, insulin, watch, catch the fall - done.

The new way that we manage BGs during the school day - Arden has four more days of school left this year and she has NEVER been to the nurse for a diabetes related reason, never. Arden and I text and speak by cell phone to manage her moment to moment type I needs. This new plan is one of the keys to her A1C reduction. In the past, I would make insulin and carb decisions only when Arden was with the nurse. This schedule left large gaps of time when high BGs, miscalculated carbs and the other diabetes anomalies would be left unaddressed. Now, Arden can text me if her BG is slightly elevated after lunch and we make small adjustments as we would if she was home with me. Lows are handle in kind, no more big carb intakes because I won't be in contact with Arden for many hours. We bump borderline lows and readdress if that bump didn't do the trick. No longer is the school day an eight hour crap shoot, Arden's diabetes is being dealt with immediately when in acts up. I plan on speaking more about this at length in the coming months.

This seems like a good time to remind you that I am not a doctor and that there is a clear message at the bottom of this page that insists that you never take anything that I say as medical advice because I do not mean these words to be such. I would however suggest talking about these easy adjustments with your doctor...

Monday
Jun102013

My Diabetes Mine guest post

 

 

A big thank you to Mike Hoskins and Diabetes Mine for featuring me today on the site for Father's Day! In addition to some nice words from Mike about my book you'll find a guest post from me titled, "The Outcome Is Not Important" and a giveaway.

I hope you get a chance to surf over and check it out... Diabetes Mine is one of the great sites and Mike's writing is top shelf - spend some time there (after you read my bit).

Friday
Jun072013

Softball Aristotle

 

Just a quick thought for Friday...

Arden played in her first All-Star game of 2013 last night. She was 3 for 3 with three singles and two RBIs. She caught two fly balls, made two long throws to first from third base and didn't let one hit ball, of which there were many, past her at third. She is eight years old, probably the smallest girl on her team and did all of this in-between having her blood glucose tested, getting insulin and having me adjust her basal rates through a fence while countless people looked on.

After the game we drove home together and Arden started to talk to me about the game. She said that she felt bad for some of the girls because it seems like, "They feel a lot of pressure when they play". She went on to talk about how she wished they didn't feel like the game rested on their shoulders and went on to speak about how she keeps her head clear when she plays. She actually said that it's important to play relaxed.

 

 

I talk all of the time about the perspective that diabetes lends to people who live with it in their lives everyday. I always think about those lessons in terms of what they bring to me but last night in the car... I began to see the perspective that type I gives to Arden. She is fiercely competitive, to the point where I have to bolus for her adrenaline when she competes, but she doesn't feel pressure when she plays. How is that possible? She isn't nervous or overwhelmed, she doesn't get too high if they win or too low if they lose (not diabetes high and low, emotional) and she's even aware of other players feelings as the game is played.

The only answer I can come up with... Looking at your meter when it says 39 while listening to the four frantic beeps of a CGM telling you that it's time to worry about your immediate well-being, must really prepare a person to handle life's pressures.

Thursday
Jun062013

Mail Order Medication Exceptions: Did you know?

 

Well I guess that you do learn something new everyday...

We are leaving for a family vacation next week so I went online and ordered a few diabetes supplies that we need for the trip. We use a mail order pharmacy and when I placed the order on their site, I was told that our insurance wouldn't allow Arden's Apidra prescription to be refilled until the 9th of June. This normally wouldn't be an issue but since we are leaving only a few days later, the insulin wouldn't arrive in time. 

So I called the 800 number and do you know what I found out?

There are exceptions that our plan allows for. I never knew before but I do now and I hope that you find out that your plans have similar fail safes built in. The best part of the exceptions? They trump insurance rules and restrictions! When the CSR tells the system to enact a restriction the order sails through the system and nothing can hold it up. Sweet!

I was told that there are three types of exceptions and that they each can be used three times a year if necessary, they are:

Emergency Exception: In case of an emergency, any emergency, I can call and have supplies sent that we require. 

Therapeutic Exception: Let's say that Arden suddenly begins to require far more insulin than she has in the past. Until I can get to her Endo and have the prescription rewritten, I just use the therapeutic exception.

Vacation Exception: Going away? Need extra stuff? Not time to refill yet? No worries... "Hello, I'm going on vacation, please send some more Apidra".

 

I hope that this information finds you well and is helpful the next time you run into a supply issue.